Miraculous Milestone - How Did The 5-Year-Old Brave A Rare Disorder?

By: Aayushi

Published On: February 02, 2023

Meet Rinki - A cheerful 5-year-old who likes to play with her brothers and sister. She says her favourite hobby is smiling.


However…


This smiling face you see before you today was once afflicted with a rare disease. A disease that many may not even know about.




“Will my baby ever be able to walk again?”, cried her mother as she watched her little angel in agony.


At the very birth of their little one, Rinki’s parents learned that their daughter was suffering from Spina Bifida. This rare congenital disorder affects the development of the spinal cord. Her parents were devastated to learn that their daughter would face a lifetime of physical and cognitive challenges.


The news did not stop the family from searching for answers. They knew that with proper medical treatment, Rinki could survive and, in fact, thrive.



"We did not care about society or how they perceived my daughter based on her condition. We just wanted our little one to be free from this pain.", said Rinki's father.


The innocent five-year-old suffered from a rare congenital condition that made it impossible for her to walk upright. Instead, she had to walk on all fours with the help of her hands and legs. Despite her condition, Rinki always kept a bright smile.


But the condition made her the target of much judgment from other children in her area. The little one was unaware of the reason behind the ridicule she was facing. She just wanted to walk again. 


More Hurdles


Coming from a small town in UP, Hathras, Rinki's family had relatively limited access to healthcare but was determined to save her daughter's life. Her father, who loved her dearly, was determined to do everything in his power to help her walk again.



They went above and beyond to ensure a better quality of life for their daughter and, eventually, found a way to treat Rinki. 


Also read: The Year That Changed My Life: Geetanjali’s Open Letter To ImpactGuru Donors



"I am a farmer. There is only so much I could do to be able to afford my daughter's treatment.", 

the father expressed his concern.


The treatment involved a series of surgeries to treat the tumour and close the gap in her spine to ensure a healthy life for the little one. The cost for the procedure was ₹16 Lakh, but the family had already exhausted most of their savings. Despite the challenges, the family was determined to give their child the best chance at recovery.


In this dire situation, the medical professionals from Devansh Hospital, Aligarh, recommended that they ask for assistance from ImpactGuru - India's #1 crowdfunding platform, to raise funds for their surgery. They created a fundraising campaign on ImpactGuru and shared Rinki's story with everyone. They explained the difficulties that Rinki faced throughout her journey and pleaded for help.


And wonders happened…


Rinki’s parents were able to run a successful campaign for their daughter by sharing their story. They spoke of the struggle that the entire family faced during her journey. They shared pictures and videos of Rinki and detailed treatments she needed to improve. They highlighted how her condition affected her mobility and daily activities and how much they wished for her to walk and play like other children her age.


The message from Rinki’s family that resonated with people was their emotional plea for help to give Rinki a second lease on life. 



Watch Rinki's story here


People from all over the nation contributed to Rinki's campaign. Thanks to the generosity of 3187 donors from around the nation, Rinki's is finally on the road to recovery. The funds raised covered the cost of her spine surgery as well as the medication and related therapy.


Also read: Baby Pranaya’s Battle With Cancer - Your Sign To Never Give Up!



“This feels like a miracle. Words cannot express how grateful I am today.”, said the mother.


Rinki is a true inspiration to all. Despite the obstacles, she has faced them with strength and courage. Rinki’s family cannot express their gratitude enough to all the ImpactGuru donors who chose to help. 


This was the story of hope and how crowdfunding could make a difference in people's lives.


Want to make a difference in someone’s life? Be a part of ImpactGuru today.