“I cannot wait to see him achieve his dreams instead of fighting for his life.” - Virendra Pratap, father.
When Shashwat was around four years old, we noticed he wasn’t as physically active as other children. He would fall often. He struggled to keep up. After many hospital visits, tests, and sleepless nights, we heard the words that changed our lives, Spinal Muscular Atrophy (Type 3), said his doctors. As a father, nothing prepares you for that moment.
SMA is a rare genetic condition that slowly weakens muscles over time. Since childhood, my son has lived with progressive muscle weakness, low stamina, posture difficulties, back pain, and limited mobility. Simple daily activities take tremendous effort.
But his body may feel weak, but his will is unbreakable. Today, Shashwat is 18. He is preparing for NEET and wants to build a career in healthcare. He tells me, “Papa, I want to help people like me.” When he says that, I see courage that inspires even me.
“I want to stand on my own feet, in every sense, I want to support my family and chase my dreams.” - Shashwat Singh.
There is no simple cure for SMA. But doctors at P. D. Hinduja Hospital And Medical Research Centre, Mumbai have advised ongoing treatment with ₹5 cr Risdiplam, regular physiotherapy, specialist consultations, nutritional care, and continuous monitoring. Consistency is critical as any interruption can worsen his condition.
As the only earning member in the family, I try my best to manage household expenses, education, and his long-term medical needs. We have used our savings but the treatment is ongoing and financially demanding. Your support is all that we count on now. Your generosity is life-saving.
How can you help my son?
Donate to his treatment.
By donating, you help ensure that he receives the treatment that saves his life.
Share his story with your family and friends.
By sharing his story with your loved ones and friends, you will help to amplify his voice to those who care and are willing to donate.
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18 वर्षीय शशवत को स्पाइनल मस्कुलर एट्रोफी टाइप 3 का निदान हुआ है।
मांसपेशियों की गंभीर कमजोरी के कारण उन्हें लंबे समय तक रिस्डिपलाम दवा की आवश्यकता है।
आपका सहयोग एक युवा जीवन बचा सकता है।
आज ही दान करें!
आप मेरे बेटे की मदद कैसे कर सकते हैं?
उसके इलाज के लिए दान करें।
दान करके, आप यह सुनिश्चित करने में मदद करेंगे कि उसे वह इलाज मिले जो उसकी जान बचाएगा।
उसकी कहानी अपने परिवार और दोस्तों के साथ साझा करें।
अपने प्रियजनों और दोस्तों के साथ उसकी कहानी साझा करके, आप उसकी आवाज़ को उन लोगों तक पहुँचाने में मदद करेंगे जो उसकी परवाह करते हैं और दान करने को तैयार हैं।
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.