A Mother's Plea: Help Us Save Our Kabbir from SMA

To the world, you are just one person. But to one person, you are the whole world. For me, that person is my son, Kabbir.

The day he came into our lives, on March 24, 2025, was the day my world found its missing color. My heart, which I never knew had a space, was suddenly and filled. I remember dreaming of the simple joys of motherhood—watching my baby boy take his first steps, hearing his giggles echo through our home, chasing him as he ran around teasing me. I held him in my arms, this perfect little boy, and our family felt complete.

In those early days, I was captivated by his tiny smiles and the way his eyes lit up when we played. I didn't know then that those precious, fleeting moments were part of a beautiful, cruel illusion. I wasn't aware that while I was dreaming of his future, my little boy was fighting a silent, brutal battle within himself.

The enemy has a name: Spinal Muscular Atrophy (SMA).

SMA is a rare genetic monster that robs a child of their most basic strength. It attacks the nerve cells in the spinal cord, taking away the ability to move, to swallow, and eventually, to breathe. The muscles that should be growing stronger with every giggle and kick were, in fact, growing weaker. The dreams I had of him running were replaced by the devastating reality that he might never even crawl.

Then, our worst nightmare came to life. On the morning of October 8th, at 4 AM, my Kabbir was rushed to the hospital. A common cold, a simple case of pneumonia, became a life-threatening crisis for his fragile body. We watched in helpless horror as our smiling boy, who had just been playing with us, was put on a ventilator.

Nothing can prepare a parent for this. The sound of the machines, the sight of tubes helping him breathe, the food pipe that now feeds him… it shatters your soul. The hardest part? As his father, he now needs permission just to hold his own son's hand. The rest of our family, who wait by the phone day and night, can only pray from a distance, their hearts breaking with every passing hour.

But amidst this darkness, there is a single, brilliant beam of hope.

The doctors have told us about a one-time gene therapy called Zolgensma. It’s a miracle in a vial, a treatment that can replace the gene Kabbir is missing and halt the progression of SMA. It could give him a chance to breathe on his own, to grow stronger, to live the life we always dreamed for him.

There is one overwhelming obstacle. The cost.

Zolgensma is priced at a staggering 16 Crore INR. It is a number that echoes in my mind every second, a mountain we must climb against time. Kabbir must be strong enough and off the ventilator to receive this infusion. The clock is ticking, and every moment we wait, SMA tightens its grip.

We have been humbled and overwhelmed by the kindness we've received so far. Your support has brought us this far, but the fight is not over. We are running out of time.

I am not just a mother asking for help. I know I am not alone in this fight. I feel your prayers, and I see the power of your shared love.

Please, asking you from the bottom of my heart:

• Donate whatever you can. No amount is too small. It all adds up to a lifetime for Kabbir.
• Share his story. Share it with your friends, your family, and on your social media. You never know who might see it and be able to help.
• Pray for him. Keep our little warrior in your thoughts.
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Let’s come together as a global family. Let’s turn this impossible sum into a possible future. Let’s gift Kabbir not just a treatment, but a chance to come home, to laugh, and to truly live.

Bring Kabbir Home. Give him the chance to fight.

With all the love and hope in my heart,

Kabbir's Mother