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"Don’t Let SMA Steal Kabir’s Smile : Help Us Save Him"

"Don’t Let SMA Steal Kabir’s Smile : Help Us Save Him"

NT
Campaigner Details
Impactguru Verified

Nikki Tomar
Delhi Delhi Contact
K
Beneficiary Details
Impactguru Verified

Kabbir
Helping Kabbir
Patient Hospitalised at
Sir Ganga Ram City Hospital, Pusa Road, New Delhi , New Delhi

of $ 5,882

0 Donors
Funds will be transferred for patient's treatment
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Every social media share can bring $80
NT
Campaigner Details
Impactguru Verified

Nikki Tomar
Delhi Delhi | Contact
K
Beneficiary Details
Impactguru Verified

Kabbir
Helping Kabbir
Patient Hospitalised at
Sir Ganga Ram City Hospital, Pusa Road, New Delhi , New Delhi

Story


A Mother’s Appeal: Help My Baby Kabbir Fight Spinal Muscular Atrophy


My name is Ishita, and I am writing this with a mother’s trembling hands and a heart full of hope. After 5 years of marriage, God blessed us with the most precious gift of our lives — our baby boy, Kabbir. He brought endless joy, laughter, and dreams into our home.


But just 6 months into his life, those dreams have been shattered by a cruel diagnosis — Spinal Muscular Atrophy (SMA) Type 1.


SMA is a rare genetic disorder that weakens the muscles and makes even the simplest acts — breathing, swallowing, or moving — a daily struggle. Every single day feels like a battle against time.


Doctors have told us that there is only one hope for Kabbir: Zolgensma Gene Therapy. This one-time infusion can stop the progression of the disease and give our baby a chance at a normal life. But the cost of this miracle treatment is something no parent can ever be prepared for — ₹16+ Crore INR


We are ordinary parents, not capable of raising such an unimaginable amount on our own. Every passing day, every delayed treatment reduces our chances of saving Kabbir.


💔 As a mother, it breaks me to see my child fighting for breath when all I want is to see him take his first steps, say his first words, and live a life filled with love and laughter.


🙏 I am humbly appealing to you — your kindness can save my son’s life. No contribution is small; each rupee brings us closer to giving Kabbir the future he deserves.

Please help us by:


  1. Donating whatever you can towards Kabbir’s treatment.
  2. Sharing this fundraiser with your friends, family, and network.


Together, we can give my baby boy a second chance at life.

💙 From one parent’s heart to another — I beg you, please stand with us in this fight for Kabbir’s life.


With gratitude and hope,

Ishita (Mother of Kabbir)

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances: i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the treatment,
Impact Guru shall have the discretion to use such surplus funds to allocate to i) other patients on Impact Guru for their life-saving treatment and/or donors to provide health benefits with object to maximize social impact; and/or ii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.

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