“I am reaching out as a father with a heart full of fear, pain, and desperate hope. My 8-month-old son, Yuvansh, has been diagnosed with a rare and life-threatening condition called Spinal Muscular Atrophy Type 1 (SMA-1). It's a condition that has turned our lives upside down.” - Rajesh (father) 

Yuvansh was born a healthy, happy baby. His giggles, his tiny fingers holding ours, every moment was a blessing. 

But slowly, we began to notice that he wasn’t moving like other babies. He seemed weak and less active. On May 18, 2025, after several hospital visits and tests at Nehru Hospital, PGI, Chandigarh, we received the heartbreaking news that our little boy has SMA Type 1.

‘SMA is a genetic disorder that weakens the muscles, including those that help in breathing, eating, and moving. 

It is caused by a missing or faulty SMN1 gene, which the body needs to make a protein that supports muscle strength. Without this protein, muscles get weaker and eventually stop working.’

“SMA Type 1 is the most severe form, and without urgent treatment, it can be fatal within the first few years of life.” - Medical expert 

But there is hope. A single-dose gene therapy drug called Zolgensma. It’s not just a treatment; it’s a chance at life. 

Zolgensma works by replacing the missing gene and restoring the function that Yuvansh’s body desperately needs.

The cost of this life-saving treatment is ₹14 crore (approximately 1.7 million USD). As parents working in government jobs. I serve in the police, and my wife works in the Food and Supply Department. Our yearly income is around a few lakhs. 

We've already spent tens of lakhs from all our savings and support, but arranging ₹14 crore on our own is impossible.

Currently, Yuvansh is at home, receiving regular physiotherapy and supportive medication, but this is only temporary. 

The doctors have advised Zolgensma as urgently as possible, as time is slipping away and his muscles are growing weaker each day.

“Yuvansh weighs just 6.5 kg, and the dosage for Zolgensma is carefully calculated based on his weight. It will be administered intravenously in a single dose, but it also requires pre-treatment tests, hospitalisation, and close follow-up care.” - Medical expert 

“Like any parent, I have dreams for my child. I dream of seeing him grow, run, laugh, and live a full life. I dream of him becoming a doctor one day, someone who will help others like him.” - Yuvansh’s  mother 

But today, he needs you to help make that dream possible.

Please, from one parent to another, from one human to another, help us save our son. Your big contributions and ample support can bring us one step closer to giving Yuvansh the gift of life. 

Donate now and share my son’s story to help him complete his treatment by getting Zolgensma. 

How to Help? 

Donate: Please click the donate button to donate and help my son overcome SMA-1. 

Share: Share my son’s story with your friends and family and request them to share and re-share his struggles on WhatsApp, Instagram, Facebook, Twitter, and other social media channels.

"मैं एक पिता के रूप में डर, दर्द और हताश आशा से भरे दिल से मदद मांग रहा हूं। मेरे 8 महीने के बेटे, युवांश को स्पाइनल मस्कुलर अट्रोफी टाइप 1 (SMA-1) नामक एक दुर्लभ और जानलेवा बीमारी का पता चला है। यह एक ऐसी बीमारी है जिसने हमारी ज़िंदगी को उल्टा कर दिया है।" - राजेश (पिता)

अभी दान करें और मेरे बेटे की कहानी साझा करें ताकि उसे ज़ोलगेन्स्मा प्राप्त करके अपना उपचार पूरा करने में मदद मिल सके। 

कैसे मदद करें? 

दान करें: कृपया दान बटन पर क्लिक करके दान करें और मेरे बेटे को SMA-1 से उबरने में मदद करें। 

साझा करें: अपने दोस्तों और परिवार के साथ मेरे बेटे की कहानी साझा करें और उनसे अनुरोध करें कि वे व्हाट्सएप, इंस्टाग्राम, फेसबुक, ट्विटर और अन्य सोशल मीडिया चैनलों पर उसके संघर्षों को साझा करें और फिर से साझा करें।

**Disclaimer - SMA is a progressive disease that causes Yuvansh’s muscles to weaken over time. To prevent further deterioration and slow the progression, Yuvansh urgently needs the drug Risdiplam to preserve muscle function only if it is prescribed by the doctor, While the fundraising for Zolgensma is underway, starting Risdiplam immediately is a critical step to safeguard the child’s life and preserve muscle function.**