“This is not how I pictured it, her future lies at stake.” - Md Shadman, father.
It began with seizures and soon we noticed involuntary movements and a delayed development. My first born and barely 1 year and 7 month old daughter Zunairah Fatima’s life took a whole different course. It has now been more than 8 months since the doctors at Dr Rela Institute And Medical Center, Chennai diagnosed her with MSUD Type 1.
Maple Syrup Urine Disease (MSUD) Type I is the most common and severe form of this rare genetic disorder, caused by a faulty enzyme (BCKDH Complex) that can't break down branched-chain amino acids (BCAAs) like leucine, leading to toxic buildup, a sweet-smelling urine poor feeding, lethargy, and neurological damage.
My daughter is currently under medication and needs a protein restricted diet. While children her age run around, laugh and play, she struggles most days.
Zunairah is under consultation with Metabolic Consultant, Neurologist, Paediatrician , Dietician. She also needs a liver transplant to fight the disease and so a low protein diet is essential to her wellbeing.
As her father, all I dream of is seeing my daughter live her life and achieve her dreams but I am the sole earner of our family which includes my wife and my Zunairah’s grandparents. I have been trying my best to manage the funds and we have spent approximately 15 lakh rupees so far but my little girl still needs more than 30 lakh rupees.
The Doctor’s Advice and Course Urgency:
The surgery has to be performed within the next 2 to 3 months depending upon the severity post transplant. “It needs to be done as soon as possible,” quotes the doctor.
My only dream: To see my child grow up and lead a good and happy life.
I know that my only dream can come true if my little angel has the support of kind souls who care. My daughter’s treatment is costly and so I come to you with a dream and a prayer to save my little girl. Your generosity can make all the difference.
How can you help my daughter?
Donate to her treatment.
By donating, you help ensure that she receives the treatment that saves her life.
Share her story with your family and friends.
By sharing her story with your loved ones and friends, you will help to amplify her voice to those who care and are willing to donate.
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১ বছর ৭ মাস বয়সী জুনাইরা ফাতিমা বিরল MSUD টাইপ ১ এর সম্মুখীন।
তার ক্রমাগত খিঁচুনি এবং বিলম্বিত বিকাশ রয়েছে
কম প্রোটিনযুক্ত খাবারের সাথে লিভার প্রতিস্থাপনের জন্য তার পরামর্শ চলছে
আপনার সহায়তা অত্যন্ত গুরুত্বপূর্ণ
তুমি আমার মেয়েকে কিভাবে সাহায্য করতে পারো?
তার চিকিৎসায় দান করো।
দান করার মাধ্যমে, তুমি নিশ্চিত করতে পারো যে সে তার জীবন বাঁচানোর চিকিৎসা পাচ্ছে।
তোমার পরিবার এবং বন্ধুদের সাথে তার গল্প ভাগ করে নাও।
তোমার প্রিয়জন এবং বন্ধুদের সাথে তার গল্প ভাগ করে নাও, তুমি তার কণ্ঠস্বর তাদের কাছে তুলে ধরবে যারা দান করতে আগ্রহী এবং দান করতে ইচ্ছুক।
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.