“Yusuf has been diagnosed with Spinal Muscular Atrophy Type-1 (SMA-1), a rare genetic disorder that weakens his muscles, making it impossible for him to sit, crawl, or even move his tiny hands and legs like other children his age.” - Azhar (father) 

“He has my smile, but not my strength.” – Azhar

My name is Azhar Najeer Nadaf, and I am reaching out to you not just as a father, but as someone desperate to save his 9-month-old son, Yusuf Azhar Nadaf.

Yusuf was diagnosed with Spinal Muscular Atrophy Type 1 (SMA Type 1) when he was just 7 months old. This is a rare and severe genetic disorder that weakens the muscles used for movement, breathing, and swallowing. 

For Yusuf, that means he can’t sit without support, can’t move his hands or legs, and struggles to breathe and swallow on his own. Even something as simple as coughing becomes a challenge.

It’s heartbreaking to see our happy, beautiful baby, who still smiles through his pain, struggling silently while the clock ticks away.

Doctors at DY Patil Hospital, Pune, have confirmed that the only real hope for Yusuf is Zolgensma, a one-time gene therapy drug that replaces the missing gene responsible for SMA. 

This treatment can stop the condition from progressing and give Yusuf the chance to live like any other child. But it comes at a hefty cost of ₹16 crores.

Till now, we’ve spent around ₹13–14 lakhs from our savings and by selling gold. Yusuf is currently on Risdiplam, a daily oral medicine that helps slow the disease, but even that costs us ₹84 lakhs a year, which is far beyond our reach. 

“Time is running out for my little son Yusuf. Doctors have urged us to administer Zolgensma within the next three months to give him the best chance at life. Your support could be the miracle that saves Yusuf and gives him the life he deserves.” - Bushra (mother) 

We are a family of six, with only two earning members, my father and I, both self-employed. Despite working hard every day, this expense is impossible for us without help. 

Now, I am placing my faith in kind-hearted people like you.

Please help us save Yusuf. Every single donation, every share of this message, brings us closer to giving him the life he deserves, a life where he can breathe freely, sit, move, and play like other children his age.

Donate now and share my son’s story to help him complete his treatment. 

How to Help? 

Donate: Please click the donate button to donate and help my son overcome Spinal Muscular Atrophy Type 1 (SMA Type 1). 

Share: Share my son’s story with your friends and family and request them to share and re-share his struggles on WhatsApp, Instagram, Facebook, Twitter, and other social media channels.

“युसुफला स्पाइनल मस्क्युलर अ‍ॅट्रोफी टाइप-१ (SMA-1) असल्याचे निदान झाले आहे, जो एक दुर्मिळ अनुवांशिक विकार आहे जो त्याच्या स्नायूंना कमकुवत करतो, ज्यामुळे त्याला त्याच्या वयाच्या इतर मुलांप्रमाणे बसणे, रांगणे किंवा त्याचे छोटे हात आणि पाय हलवणे अशक्य होते.” - अझहर (वडील) 

माझे नाव अझहर नजीर नदाफ आहे आणि मी फक्त एक वडील म्हणून नाही तर त्याच्या ९ महिन्यांच्या मुलाला, युसुफ अझहर नदाफला वाचवण्यासाठी उत्सुक असलेल्या व्यक्ती म्हणून तुमच्याशी संपर्क साधत आहे.

युसुफला फक्त ७ महिन्यांचा असताना स्पाइनल मस्क्युलर अ‍ॅट्रोफी टाइप-१ (SMA टाइप-१) असल्याचे निदान झाले. हा एक दुर्मिळ आणि गंभीर अनुवांशिक विकार आहे जो हालचाल, श्वास आणि गिळण्यासाठी वापरल्या जाणाऱ्या स्नायूंना कमकुवत करतो.

आताच देणगी द्या आणि माझ्या मुलाची कहाणी शेअर करा जेणेकरून त्याला त्याचा उपचार पूर्ण करण्यास मदत होईल.

कशी मदत करावी?

देणगी: माझ्या मुलाला स्पाइनल मस्क्युलर अ‍ॅट्रोफी टाइप १ (SMA टाइप १) वर मात करण्यासाठी आणि मदत करण्यासाठी कृपया देणगी बटणावर क्लिक करा.

शेअर करा: माझ्या मुलाची कहाणी तुमच्या मित्रांसोबत आणि कुटुंबासोबत शेअर करा आणि त्यांना व्हॉट्सअॅप, इंस्टाग्राम, फेसबुक, ट्विटर आणि इतर सोशल मीडिया चॅनेलवर त्याच्या संघर्षांबद्दल शेअर करण्याची आणि पुन्हा शेअर करण्याची विनंती करा.

**Disclaimer - SMA is a progressive condition that causes Yusuf’s muscles to weaken over time. To prevent further deterioration and slow the progression, Yusuf urgently needs the drug Risdiplam to preserve muscle function, only if it is prescribed by the doctor. While the fundraising for Zolgensma is underway, starting Risdiplam immediately is a critical step to safeguard the child’s life and preserve muscle function.**