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Fundraiser ended on Dec 30, 2025

"Giving Maheen a Fighting Chance: Your Help Can Save Her"

"Giving Maheen a Fighting Chance: Your Help Can Save Her"

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Pyaru
Nagpur Maharashtra Contact
MS
Beneficiary Details
Impactguru Impactguru

Maheen Shaikh
Helping Maheen Shaikh
Patient is currently not admitted

of $ 230

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Pyaru
Nagpur Maharashtra | Contact
MS
Beneficiary Details
Impactguru Impactguru

Maheen Shaikh
Helping Maheen Shaikh
Patient is currently not admitted

Story


A Father’s Urgent Appeal for Help

Please Help Save My Daughter Maheen’s Life

My name is Akil Ahmad Sheikh, and I am the father of a brave little girl named Maheen. I’m doing everything I can to save her life.

Maheen has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2 — a rare and life-threatening genetic disorder that causes progressive muscle weakness. It is slowly taking away her ability to move, stand, and even breathe on her own.

But there is hope and that hope lies in a treatment called Spinraza.

Spinraza is a lifesaving medicine that can slow the progression of SMA and give Maheen a real chance at life. But the cost is overwhelming.

  • Each dose of Spinraza costs around ₹87 lakh
  • The total cost for the first year, including multiple doses, can run into ₹7 crores

This amount is far beyond what I, as a middle-class father, can afford. But I refuse to give up on my daughter. She deserves a chance to live, laugh, and grow up like any other child.

Watching Maheen grow weaker day by day is a pain no parent should ever experience. And yet, I still believe in miracles — and I believe that your kindness could be that miracle.


🙏 Please help us.

Any donation, big or small, will bring us one step closer to saving Maheen’s life.

If you can’t donate, please consider sharing this message — your support might reach someone who can help.

With hope and gratitude,

Akil Ahmad Sheikh

Father of Maheen


____________________________________________________________________________________________________________________________________________________



एक पिता की ज़रूरी अपील

कृपया मेरी बेटी माहीन की जान बचाने में मदद करें

मेरा नाम अखिल अहमद शेख है, और मैं एक बहादुर नन्ही लड़की माहीन का पिता हूँ। मैं उसकी जान बचाने के लिए पूरी कोशिश कर रहा हूँ।

माहीन को स्पाइनल मस्कुलर एट्रोफी (SMA) टाइप 2 नामक एक दुर्लभ और जानलेवा आनुवंशिक बीमारी हुई है, जो मांसपेशियों को कमजोर करती है। यह धीरे-धीरे उसकी चलने, खड़े होने, और यहां तक कि खुद सांस लेने की क्षमता भी छीन रही है।

लेकिन उम्मीद है — और वह उम्मीद है स्पिनराज़ा नाम की दवा में।

स्पिनराज़ा एक जीवन रक्षक इलाज है, जो SMA की प्रगति को धीमा कर सकता है और माहीन को एक वास्तविक जीवन का मौका दे सकता है। लेकिन इसका खर्च भारी है।

  • स्पिनराज़ा की हर खुराक की कीमत लगभग ₹87 लाख है
  • पहले वर्ष के लिए कुल लागत, जिसमें कई खुराकें शामिल हैं, लगभग ₹7 करोड़ हो सकती है

यह राशि मैं, एक मध्यमवर्गीय पिता, कभी भी वहन नहीं कर सकता। लेकिन मैं अपनी बेटी को हार मानने वाला नहीं हूँ। वह भी हर बच्चे की तरह जीने, हंसने और बढ़ने की हकदार है।

माहीन को हर दिन कमजोर होते देखना वह दर्द है जो कोई भी माता-पिता महसूस न करें। फिर भी, मैं चमत्कारों पर भरोसा करता हूँ — और मुझे विश्वास है कि आपकी दया वही चमत्कार हो सकती है

🙏 कृपया हमारी मदद करें।

आपका दिया गया हर दान, बड़ा हो या छोटा, माहीन की जान बचाने के करीब ले जाएगा।

यदि आप दान नहीं कर सकते, तो कृपया इस संदेश को साझा करें — आपकी मदद से यह सही व्यक्ति तक पहुँच सकता है।

आशा और कृतज्ञता के साथ,

अखिल अहमद शेख

माहीन के पिता

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances: i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the treatment,
Impact Guru shall have the discretion to use such surplus funds to allocate to i) other patients on Impact Guru for their life-saving treatment and/or donors to provide health benefits with object to maximize social impact; and/or ii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.

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