“Please Help Me Save My Daughters – Kaashvi & Arohvi Deserve a Future Full of Life”
My name is Rekha, and I am the proud mother of two beautiful daughters – Kaashvi, aged 2 years and 8 months, and Arohvi, who is just 2 month old. Like any mother, I had dreams of watching them grow up together – laughing, learning, and living life to the fullest.
But life had other plans.
Our world came crashing down when both my daughters were diagnosed with Spinal Muscular Atrophy (SMA) – a rare, progressive, and life-threatening genetic disorder.
🧬 Understanding SMA: A Silent Killer
SMA gradually weakens the muscles needed for movement, breathing, and even basic functions like swallowing. It takes away a child’s ability to sit, stand, or walk — and without timely treatment, it can even be fatal.
- Arohvi has been diagnosed with SMA Type 1 – the most severe form, often fatal if untreated in early infancy.
- Kaashvi has been diagnosed with SMA Type 2, which also leads to significant disability and loss of motor function over time.
There is only one hope for both of them — a one-time gene therapy called Zolgensma.
💉 Zolgensma: A Life-Saving Shot, But at a Heartbreaking Cost
Zolgensma is a one-time, gene-replacement therapy that can halt the progression of SMA, and give children a real chance at life. But this miracle drug comes with a staggering price tag of ₹16 Crores per child.
As parents from a modest, middle-class background, no sacrifice is too big for our children. But even after giving up everything we have, this amount is beyond our reach.
Thankfully, Novartis – the manufacturer of Zolgensma – has agreed to offer the medicine on an EMI plan.
Under this, we need to pay an upfront amount of ₹9 Crores for each child, and the rest in phases.
Our Challenge: ₹18 Crores Needed to Save Both Lives
To treat both daughters, we now need a total of ₹18 Crores upfront. This is an unimaginable amount for any family to raise alone.
We are doing everything humanly possible – reaching out to organizations, friends, strangers, and anyone willing to listen. But we cannot do this alone.
This Is a Mother’s Request to You
This is not just a fundraiser.
This is our fight to give Kaashvi and Arohvi the chance they deserve — to run, to laugh, to grow up holding each other’s hands.
Your support can help us gift them that chance.
- Please donate whatever you can
- Please share their story with your friends, your network, your community
- Please be a part of this life-saving journey
Your kindness today could shape the rest of their lives.
Let’s come together to give Kaashvi and Arohvi the future they were born to live.
With hope and gratitude,
Rekha
(Mother of Kaashvi & Arohvi)
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
