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Support Baby of Rakesh Upadhya

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A Rare Tumor Is Stealing Our Baby’s Childhood—We Need Your Help

A Rare Tumor Is Stealing Our Baby’s Childhood—We Need Your Help

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Campaigner Details
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Manju Singh
Delhi Delhi Contact
BO
Beneficiary Details
Impactguru Impactguru

Baby of Rakesh Upadhya
Child of Manju Singh
Patient receiving treatment at home

of $ 10,588

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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.

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Campaigner Details
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Manju Singh
Delhi Delhi | Contact
BO
Beneficiary Details
Impactguru Impactguru

Baby of Rakesh Upadhya
Child of Manju Singh
Patient receiving treatment at home

Story


Hello,


"As a parent, the hardest thing you can face is seeing your child in pain. Every moment feels like a race against time."


Our beautiful baby girl, lovingly known as Baby of Mr. Upadhya, is only 1 year old. She’s the light of our lives, filling every corner of our home with her innocent giggles and boundless energy. At just one year, she hasn’t even had the chance to explore the world or say her first full sentence, and yet she's facing a challenge far greater than most of us could imagine.


It all began a few weeks ago when we noticed something unusual. She was struggling to move the way she used to, and her energy seemed to slip away day by day. We thought it was something minor that a little rest would cure. But when her symptoms didn’t improve, we knew something wasn’t right. After countless consultations, tests, and scans, our worst fears were confirmed—our baby was diagnosed with a Large Lipo-meningomyelocele with Paraparesis.


This rare and serious spinal condition occurs when a mass of fatty tissue protrudes through a defect in the spine, often leading to neurological impairment. In her case, it has already caused paraparesis, a form of partial paralysis affecting her lower limbs. This condition not only threatens her ability to move but could seriously affect her growth, bladder function, and overall quality of life without urgent intervention.


The word "tumor" shattered every illusion of safety and normalcy we had for her future. Though non-cancerous, this congenital spinal defect requires urgent medical management, constant care, and possibly surgical intervention—every day without treatment increases the risk of permanent nerve damage and worsening paralysis.


Our current treatment plan consists of home care under specialist guidance in Delhi, as hospitalizing her at this fragile age carries its own risks. We’ve already spent everything we had to get her diagnosed and begin preliminary treatments. The medical costs are overwhelming, and every rupee we've saved has gone towards giving her a fighting chance. My husband and I are just ordinary individuals trying to give our extraordinary little girl a second chance at life.


Doctors have stressed that immediate and advanced treatment is non-negotiable, and the clock is ticking. If her condition doesn’t improve soon, the consequences could be dire. As parents, we are doing everything humanly possible, but we are running out of time and resources. We need help—your help.


To save her life and preserve her ability to move, we need to raise ₹9,00,000. The amount will go towards her ongoing treatment, advanced scans, therapies, and critical consultations with pediatric neurospecialists. Every single contribution brings us closer to seeing her smile again. If just 900 people donate ₹1,000 each, we can reach this goal together.


Your support can change everything for our baby. Please consider donating and sharing this message with as many people as possible. Together, we can give her the fighting chance she so desperately needs. From the depths of our hearts, thank you for your kindness, compassion, and generosity.


===============================================================================



"एक अभिभावक के तौर पर, आपके लिए सबसे मुश्किल काम होता है अपने बच्चे को दर्द में देखना। हर पल समय के साथ दौड़ जैसा लगता है।"


हमारी प्यारी बच्ची, जिसे प्यार से बेबी ऑफ मिस्टर उपाध्याय कहते हैं, सिर्फ़ एक साल की है। वह हमारे जीवन की रोशनी है, अपनी मासूम खिलखिलाहट और असीम ऊर्जा से हमारे घर के हर कोने को भर देती है। सिर्फ़ एक साल की उम्र में, उसे दुनिया को जानने या अपना पहला पूरा वाक्य बोलने का मौका भी नहीं मिला है, और फिर भी वह एक ऐसी चुनौती का सामना कर रही है जिसकी हममें से ज़्यादातर लोग कल्पना भी नहीं कर सकते।


यह सब कुछ हफ़्ते पहले शुरू हुआ जब हमने कुछ असामान्य देखा। वह पहले की तरह हिलने-डुलने में कठिनाई महसूस कर रही थी, और उसकी ऊर्जा दिन-ब-दिन कम होती जा रही थी। हमें लगा कि यह कोई मामूली बात है जो थोड़े आराम से ठीक हो जाएगी। लेकिन जब उसके लक्षणों में कोई सुधार नहीं हुआ, तो हमें पता चल गया कि कुछ ठीक नहीं है। अनगिनत परामर्शों, परीक्षणों और स्कैन के बाद, हमारी सबसे बड़ी आशंकाएँ सच साबित हुईं—हमारी बच्ची को पैरापैरेसिस के साथ एक बड़े लिपो-मेनिंगोमाइलोसील का पता चला।


यह दुर्लभ और गंभीर रीढ़ की हड्डी की बीमारी तब होती है जब रीढ़ की हड्डी में किसी दोष के माध्यम से वसायुक्त ऊतक का एक समूह बाहर निकल आता है, जिससे अक्सर तंत्रिका संबंधी क्षति होती है। उसके मामले में, इससे पहले ही पैरापेरेसिस हो चुका है, जो उसके निचले अंगों को प्रभावित करने वाला एक प्रकार का आंशिक पक्षाघात है। यह स्थिति न केवल उसकी चलने-फिरने की क्षमता को खतरे में डालती है, बल्कि तत्काल हस्तक्षेप के बिना उसके विकास, मूत्राशय के कार्य और जीवन की समग्र गुणवत्ता को भी गंभीर रूप से प्रभावित कर सकती है।


"ट्यूमर" शब्द ने उसके भविष्य के लिए हमारी सुरक्षा और सामान्यता के हर भ्रम को चकनाचूर कर दिया। हालाँकि यह कैंसरकारी नहीं है, फिर भी इस जन्मजात रीढ़ की हड्डी के दोष के लिए तत्काल चिकित्सा प्रबंधन, निरंतर देखभाल और संभवतः शल्य चिकित्सा की आवश्यकता होती है—बिना उपचार के हर दिन स्थायी तंत्रिका क्षति और पक्षाघात के बिगड़ने का खतरा बढ़ जाता है।


हमारी वर्तमान उपचार योजना में दिल्ली में विशेषज्ञ मार्गदर्शन में घर पर ही देखभाल शामिल है, क्योंकि इस नाज़ुक उम्र में उसे अस्पताल में भर्ती करने के अपने जोखिम हैं। हमने उसका निदान करवाने और प्रारंभिक उपचार शुरू करने के लिए अपनी सारी संपत्ति पहले ही खर्च कर दी है। चिकित्सा लागत बहुत अधिक है, और हमने जो भी पैसा बचाया है, वह उसे एक मौका देने में खर्च हो गया है। मैं और मेरे पति बस साधारण लोग हैं जो अपनी असाधारण नन्ही बच्ची को जीवन में दूसरा मौका देने की कोशिश कर रहे हैं।


डॉक्टरों ने ज़ोर देकर कहा है कि तत्काल और उन्नत उपचार पर कोई समझौता नहीं किया जा सकता, और समय तेज़ी से बीत रहा है। अगर उसकी हालत में जल्द सुधार नहीं हुआ, तो परिणाम भयावह हो सकते हैं। माता-पिता होने के नाते, हम मानवीय रूप से हर संभव कोशिश कर रहे हैं, लेकिन हमारे पास समय और संसाधन कम पड़ रहे हैं। हमें मदद चाहिए—आपकी मदद।


उसकी जान बचाने और उसकी गतिशीलता बनाए रखने के लिए, हमें ₹9,00,000 जुटाने होंगे। यह राशि उसके चल रहे इलाज, उन्नत स्कैन, थेरेपी और बाल रोग विशेषज्ञों के साथ ज़रूरी परामर्श के लिए इस्तेमाल की जाएगी। हर एक योगदान हमें उसकी मुस्कान फिर से देखने के करीब लाता है। अगर सिर्फ़ 900 लोग ₹1,000-₹1,000 दान करें, तो हम मिलकर इस लक्ष्य को हासिल कर सकते हैं।


आपका सहयोग हमारी बच्ची के लिए सब कुछ बदल सकता है। कृपया दान करें और इस संदेश को ज़्यादा से ज़्यादा लोगों के साथ साझा करें। साथ मिलकर, हम उसे वो लड़ने का मौका दे सकते हैं जिसकी उसे सख़्त ज़रूरत है। आपकी दया, करुणा और उदारता के लिए हम तहे दिल से आपका शुक्रिया अदा करते हैं।

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances: i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the treatment,
Impact Guru shall have the discretion to use such surplus funds to allocate to i) other patients on Impact Guru for their life-saving treatment and/or donors to provide health benefits with object to maximize social impact; and/or ii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
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