I still remember the day Agampreet was born - his tiny hands gripping my finger, his soft breaths warming my heart. He was perfect, and I dreamed of watching him grow, play, and chase his dreams. But fate had other plans.
When Agampreet was 4, my wife and I started noticing small things. He struggled to climb stairs, lost balance easily, and couldn’t lift himself up after sitting. We thought he was just a little weaker than other kids his age. But as time passed, his condition worsened. He would stumble often, needing our arms to hold him up.
“Papa, uthalo…” he would say, arms outstretched, too tired to take another step.
We took him to the Post Graduate Institute of Medical Education and Research in Chandigarh. After a series of tests, we found that Agampreet has Duchenne Muscular Dystrophy (DMD) - a progressive disorder that weakens muscles, which is taking my child’s ability to walk, eat, and eventually even breathe.
Lack of Dystrophin
I remember the doctor’s words as they were explaining that Agampreet’s body lacked dystrophin - a protein necessary for muscle function. Without it, his muscles would continue to weaken, and there was no way to stop it. The weight of those words crushed me, but I knew I had to stay strong for my son.
The Daily Struggles of My Little Boy
At 8 years old, Agampreet should be running around with his friends, playing in the park, carrying his school bag proudly, and enjoying his favorite foods. Instead, his spine is curving, his steps are unsteady, and even holding a spoon is becoming a challenge. He can’t eat on his own, he depends on us to move around, and attending school is getting harder each day.
He looks at his friends and asks his mom, “Mumma, why can’t I walk like them, jump like them, or run like them?”
Every 2 months, we take Agampreet for checkups and supplements. He dreads his medications, scrunching his nose and saying, “Mumma, yeh dawaai bohot kadvi hai!” (Mumma, this medicine is too bitter!) But he swallows them, hoping they will help. He dreams of growing up to be a pilot, soaring high above the world. But how can he fly if he can’t even stand?
About Elevidys
Doctors have told us about Elevidys - a gene replacement therapy that could slow down the progression of DMD. This treatment offers Agampreet a chance to hold on to his dreams and to fight back against this merciless disease.
But the cost of this treatment in Dubai is ₹25 crore - a sum that is a challenge for us to gather on our own. I am a farmer and a private trader, and my wife is a schoolteacher. We have done everything in our power to provide for Agampreet, but this is beyond our reach.
Our son deserves a chance to live - to grow, to study, to play, and to chase his dreams. But we cannot do it without you.
Please, open your hearts and help us give our little boy a fighting chance.
Donate now and be a part of Agampreet’s journey towards hope and healing.” Jagtar (Agampreet’s Father)
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.