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Give My Baby Girl a Fighting Chance Against Spinal Muscular Atrophy!

Give My Baby Girl a Fighting Chance Against Spinal Muscular Atrophy!

SB
Campaigner Details
Impactguru Verified

Sangita Bose
Kolkata West Bengal Contact
AB
Beneficiary Details
Impactguru Verified

Abhisikta Bose
Child of Sangita Bose
Patient is currently not admitted

of $ 1,882,353

20,211 Donors
Funds will be transferred for patient's treatment
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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.

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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.
SB
Campaigner Details
Impactguru Verified

Sangita Bose
Kolkata West Bengal | Contact
AB
Beneficiary Details
Impactguru Verified

Abhisikta Bose
Child of Sangita Bose
Patient is currently not admitted

Latest Update


Dear Donors,

We are deeply grateful for your love and support for Baby Abhishekta, who is bravely fighting Spinal Muscular Atrophy (SMA).

One month ago, Abhishekta was admitted to the hospital due to severe respiratory issues. Thanks to timely care, your prayers, and continued support, she is now showing encouraging signs of recovery. She has begun treatment with Risdiplam, an oral therapy that helps slow down the progression of SMA, and we are glad to share that her health has been improving since.

However, while Risdiplam provides some relief, it is not a permanent cure. The only definitive treatment for SMA is Zolgensma, a one-time gene therapy, which comes at an overwhelming cost of ₹16 crore.

Every single day matters in this fight. With your contributions, Abhishekta has hope for a healthier future. We humbly request your continued support:

Please donate whatever amount you can

Share Abhishekta’s story within your circle

Keep her in your prayers and thoughts

Together, we can help Abhishekta get closer to the cure she urgently needs.

Story


Dear Supporters,


My name is Sangita Bose, and I am raising funds for my 9-month-old daughter, Abhisikta Bose, who has been diagnosed with Spinal Muscular Atrophy (SMA). She is currently undergoing treatment at Peerless Hospitex Hospital and Research Centre, Kolkata.


The cost of her life-saving treatment is ₹16 crore, an amount far beyond our means. Despite our best efforts, we are unable to gather such a huge sum. We need your urgent support to save her life.


As parents, it is heartbreaking to watch our little angel suffer. Every moment feels like a battle, and we are holding onto hope with everything we have. Abhisikta deserves a chance at life—a chance to crawl, to walk, to grow up like every other child. But without this treatment, her future remains uncertain. No parent should ever have to go through this pain, feeling helpless as their child struggles.


Please help us bring Abhisikta back to a healthy, happy life. Your support, no matter how small, can be the miracle we are praying for. Every donation brings us closer to giving her the treatment she desperately needs. Please contribute and share this fundraiser with as many people as possible.


Your kindness and prayers mean the world to us.


With hope and gratitude,


Sangita Bose


-------------------------------------------------------------------------------------


প্রিয় সমর্থকরা,


আমার নাম সঙ্গীতা বোস, এবং আমি আমার 9 মাস বয়সী কন্যা অভিসিক্তা বোসের জন্য তহবিল সংগ্রহ করছি, যে স্পাইনাল মাসকুলার অ্যাট্রোফি (SMA) রোগে আক্রান্ত। তিনি বর্তমানে কলকাতার পিয়ারলেস হসপিটেক্স হাসপাতাল অ্যান্ড রিসার্চ সেন্টারে চিকিৎসাধীন।


তার জীবন রক্ষাকারী চিকিৎসার খরচ হল ₹16 কোটি, যা আমাদের সামর্থ্যের অনেক বেশি। আমাদের সর্বাত্মক প্রচেষ্টা সত্ত্বেও, আমরা এত বড় অঙ্ক সংগ্রহ করতে অক্ষম। আমরা তার জীবন বাঁচাতে আপনার জরুরী সমর্থন প্রয়োজন.


পিতামাতা হিসাবে, আমাদের ছোট্ট দেবদূতের কষ্ট দেখতে হৃদয়বিদারক। প্রতিটি মুহূর্ত একটি যুদ্ধের মত মনে হয়, এবং আমরা আমাদের যা কিছু আছে তার সাথে আশা ধরে আছি। অভিষিক্তা জীবনে একটি সুযোগ পাওয়ার যোগ্য - হামাগুড়ি দেওয়ার, হাঁটার, অন্য প্রতিটি শিশুর মতো বড় হওয়ার সুযোগ। কিন্তু এই চিকিৎসা ছাড়া তার ভবিষ্যৎ অনিশ্চিত। কোন পিতামাতাকে কখনই এই যন্ত্রণার মধ্য দিয়ে যেতে হবে না, তাদের সন্তানের সংগ্রামের কারণে অসহায় বোধ করা উচিত।


অনুগ্রহ করে আমাদের অভিষিক্তাকে সুস্থ, সুখী জীবনে ফিরিয়ে আনতে সাহায্য করুন। আপনার সমর্থন, যতই ছোট হোক না কেন, আমরা যে অলৌকিকতার জন্য প্রার্থনা করছি তা হতে পারে। প্রতিটি দান আমাদেরকে তার প্রয়োজনীয় চিকিৎসা দেওয়ার কাছাকাছি নিয়ে আসে। অনুগ্রহ করে অবদান রাখুন এবং এই তহবিল সংগ্রহকারীকে যতটা সম্ভব মানুষের সাথে শেয়ার করুন। 


আপনার উদারতা এবং প্রার্থনা আমাদের জন্য বিশ্বের মানে.


আশা এবং কৃতজ্ঞতার সাথে,


সঙ্গীতা বোস

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
Documents

Updates(2)


#1 (08 Sep, 2025)

Dear Donors,

We are deeply grateful for your love and support for Baby Abhishekta, who is bravely fighting Spinal Muscular Atrophy (SMA).

One month ago, Abhishekta was admitted to the hospital due to severe respiratory issues. Thanks to timely care, your prayers, and continued support, she is now showing encouraging signs of recovery. She has begun treatment with Risdiplam, an oral therapy that helps slow down the progression of SMA, and we are glad to share that her health has been improving since.

However, while Risdiplam provides some relief, it is not a permanent cure. The only definitive treatment for SMA is Zolgensma, a one-time gene therapy, which comes at an overwhelming cost of ₹16 crore.

Every single day matters in this fight. With your contributions, Abhishekta has hope for a healthier future. We humbly request your continued support:

Please donate whatever amount you can

Share Abhishekta’s story within your circle

Keep her in your prayers and thoughts

Together, we can help Abhishekta get closer to the cure she urgently needs.

#2 (25 Mar, 2025)

Dear Donors,

Abhisikta is battling severe health challenges at home. She struggles with swallowing and has only slight movement in her hands. Her condition remains fragile, and she is extremely weak. Despite ongoing medication and physiotherapy, she urgently needs Risdiplam, but financial constraints are delaying her treatment.

Your support can provide her with the essential medication she desperately needs. Please contribute and help her regain strength.

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