“My son’s little hands should reach for toys, not depend on us for every movement.”  -Nataraj, father.

There are things I never thought I would have to notice as a father, whether my son can sit, whether he can swallow his food, whether he is breathing comfortably. But these have become the things I watch every single day.

Keyansh is only 2 years and 9 months old. My son should be running around the house with his elder sister, asking endless questions, playing with his toys and discovering the world. Instead, SMA Type 2 is slowly taking away his strength.

Keyansh was diagnosed in March 2025. Today, he cannot sit independently. Eating has become difficult, and even breathing without help can be a struggle.

His mother watches him closely, hoping for even the smallest improvement.

This is what SMA does to my little boy

This is his reality.

“I just want to see my son do the things other children take for granted. To sit, eat, play and smile without struggling.”

I am the sole earning member of our family. For the past 1.5 years, we have used my salary and borrowed money to keep Keyansh’s treatment going. Every month, around ₹35,000–₹40,000 goes towards his medical care.

Doctors have advised Zolgensma gene therapy, along with Risdiplam, physiotherapy and other medicines. They have asked us to begin treatment as soon as possible.

“I would trade every comfort in my life for one thing, the chance to see my son stronger.”  - Sailaja, mother.

I am frightened of what another delay could cost my son. I don’t want Keyansh to grow up remembering hospital rooms. I want him to remember his sister’s laughter, his parents’ hugs and the freedom that comes with childhood. I want my son to witness his life with ease. 

I have fought as hard as I can. So has my family. Now I need you to fight alongside me. Your donation can help us give Keyansh the treatment he urgently needs. Your support is all we count on.

How can you help him?

Donate to his treatment.

By donating, you help ensure that he receives the treatment that saves his life.

Share his story with your family and friends.

By sharing his story with your loved ones and friends, you will help to amplify his voice to those who care and are willing to donate.

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ಕೇವಲ 2 ವರ್ಷ 9 ತಿಂಗಳ ವಯಸ್ಸಿನ ಕಿಯಾನ್ಶ್, 'SMA ಟೈಪ್ 2' ಕಾಯಿಲೆಯಿಂದಾಗಿ ತನ್ನ ದೇಹದ ಶಕ್ತಿಯನ್ನು ಕಳೆದುಕೊಳ್ಳುತ್ತಿದ್ದಾನೆ.

ಅವನಿಗೆ ಈಗ ಸ್ವತಃ ಕುಳಿತುಕೊಳ್ಳಲು ಸಾಧ್ಯವಾಗುತ್ತಿಲ್ಲ; ಅಷ್ಟೇ ಅಲ್ಲದೆ, ಊಟ ಮಾಡುವುದು ಮತ್ತು ಉಸಿರಾಡುವುದು ಕೂಡ ಕಷ್ಟಕರವಾಗಿದೆ.

ಸಮಯ ಕಳೆದುಹೋಗುತ್ತಿರುವಾಗ ತಮ್ಮ ಮಗು ಒಂದೊಂದೇ ಅಮೂಲ್ಯವಾದ ಸಾಮರ್ಥ್ಯಗಳನ್ನು ಕಳೆದುಕೊಳ್ಳುವುದನ್ನು ಕಂಡು ಅವನ ಪೋಷಕರು ತೀವ್ರ ಆತಂಕದಲ್ಲಿದ್ದಾರೆ.

'ಜೊಲ್ಗೆನ್ಸ್ಮಾ' (Zolgensma) ಚಿಕಿತ್ಸೆಯು ಕಿಯಾನ್ಶ್‌ಗೆ ಬದುಕಿನ ಭರವಸೆಯ ಕಿರಣವನ್ನು ನೀಡಬಲ್ಲದು. ಅವನ ಜೀವ ಉಳಿಸಲು ಈಗಲೇ ದೇಣಿಗೆ ನೀಡಿ!

ನೀವು ಅವರಿಗೆ ಹೇಗೆ ಸಹಾಯ ಮಾಡಬಹುದು?

ಅವರ ಚಿಕಿತ್ಸೆಗಾಗಿ ದೇಣಿಗೆ ನೀಡಿ.

ದೇಣಿಗೆ ನೀಡುವ ಮೂಲಕ, ಅವರ ಪ್ರಾಣ ಉಳಿಸುವ ಚಿಕಿತ್ಸೆಯು ಅವರಿಗೆ ಸಿಗುವಂತೆ ಮಾಡಲು ನೀವು ಸಹಾಯ ಮಾಡುತ್ತೀರಿ.

ಅವರ ಕಥೆಯನ್ನು ನಿಮ್ಮ ಕುಟುಂಬ ಮತ್ತು ಸ್ನೇಹಿತರೊಂದಿಗೆ ಹಂಚಿಕೊಳ್ಳಿ.

ನಿಮ್ಮ ಆಪ್ತರು ಮತ್ತು ಸ್ನೇಹಿತರೊಂದಿಗೆ ಅವರ ಕಥೆಯನ್ನು ಹಂಚಿಕೊಳ್ಳುವ ಮೂಲಕ, ಕಾಳಜಿ ವಹಿಸುವ ಹಾಗೂ ದೇಣಿಗೆ ನೀಡಲು ಸಿದ್ಧರಿರುವವರ ಬಳಿಗೆ ಅವರ ಧ್ವನಿಯನ್ನು ತಲುಪಿಸಲು ನೀವು ಸಹಾಯ ಮಾಡುತ್ತೀರಿ.