“As I hold my granddaughter in my arms, I see the pain in her eyes.” - Manni Devi, Yamya’s grandmother.
Currently: Yamya is receiving physiotherapy at home with continuous medication until she can heal. Her family hopes that she can receive the injection as soon as possible!
20th January 2023 was supposed to be an auspicious day for Yamya’s family, the day she was born but this little one’s life and growth was halted since day 1.
“SMA type 2”, said her doctors at AANCH HOSPITAL, Jaipur in Rajasthan, India. The news brought forth tears to Yamya’s grandmother, Manni Devi.
2-year-old Yamya has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a rare and life-threatening genetic condition that weakens muscles over time. This condition makes even the simplest tasks—sitting, walking, or even breathing—an enormous challenge for her.
The Symptoms Yamya faces:
- Cannot lift up her arms and legs.
- Cannot walk without support.
- No body movements.
- Unable to sit.
“Yamya is the light of our family, her laughter like sunshine on a cloudy day. She is brave beyond her years and fights her battles with a strength that leaves us in awe.” - Sunil Kumar.
The Hope Ahead
A life-saving injection called Risdiplam is a groundbreaking treatment for SMA. It is the only treatment that can give little Yamya a fighting chance. The drug can slow the progression of SMA by increasing the production of a protein critical for muscle strength, giving Yamya the opportunity to live a more active and fulfilling life.
However, this treatment comes at a staggering cost of ₹50,000,000 (5 Crores)—an amount far beyond reach for Yamya’s family.
Why Your Help Matters
Yamya’s family has already exhausted more than ₹17 lakhs for her treatment so far, exceeding their family’s income range by seeking help from relatives and friends. Despite their best efforts, they are far from the amount required to save little Yamya.
You can give Yamya a chance to experience the little joys of childhood and school, make friends, and live a life free from the constant pain and limitations imposed by SMA.
How You Can Help
Donate: Even the smallest donation can make a significant impact. Every rupee brings us closer to the goal of securing Yamya’s treatment.
Share and Support: Spreading the word is just as important as donating. Please share Yamya’s story with your family, friends, and networks on social media, WhatsApp, or through email.
The Power of Community:
Together, we can achieve what seems impossible. Imagine the joy of knowing that you helped save a little girl’s life. Your generosity can give Yamya the chance to smile, play, and dream of a bright future.
A Message from Yamya’s Grandmother
As a grandmother, it breaks my heart to see Yamya struggle. She is too young to understand why she cannot do the things other children her age can. Yet, she remains hopeful, her eyes shining with dreams, I humbly request you to be a part of Yamya’s journey to recovery.
Gratitude and Hope
Every donation, every share, and every prayer fills the hearts of Yamya’s family with hope.
You have the power to make a difference.
“All we want is to save our baby girl.” - Yamya’s family.
How can you help little Yamya?
Donate for her to receive treatment.
By donating, you help ensure that she receives the treatment that saves her life.
Share her story with your family and friends.
By sharing her story with your loved ones and friends, you will help amplify her voice to those who care and are willing to donate.
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आप छोटी याम्या की मदद कैसे कर सकते हैं?
उसे इलाज दिलाने के लिए दान करें.
दान देकर, आप यह सुनिश्चित करने में मदद करते हैं कि उसे वह उपचार मिले जो उसकी जान बचाता है।
उसकी कहानी अपने परिवार और दोस्तों के साथ साझा करें।
उसकी कहानी अपने प्रियजनों और दोस्तों के साथ साझा करके, आप उन लोगों तक उसकी आवाज़ उठाने में मदद करेंगे जो उसकी परवाह करते हैं और दान करने के इच्छुक हैं।
Disclaimer -
SMA is a progressive disease that causes Yamya's muscles to weaken over time. To prevent further deterioration and slow the progression, Yamya urgently needs the drug Risdiplam to preserve muscle function only if it is prescribed by the doctor.
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.