My name is Alok Kumar Dwivedi, and with a heavy heart, I am reaching out to you today to save my 13-month-old son, Vinayak Dwivedi. He has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a rare and life-threatening genetic disorder that weakens the muscles and robs children of the ability to walk, swallow, and even breathe on their own.
Vinayak is just a baby, but he has already endured more pain and suffering than most of us can imagine. While children his age should be learning to take their first steps, Vinayak struggles with every simple movement. Watching him lie helplessly, unable to move freely, breaks our hearts every single day.
Doctors have told us that there is only one treatment that can save his life — the world’s most expensive drug, Zolgensma. It is a one-time gene therapy that can stop the progression of this cruel disease and give Vinayak the chance to live like a normal child. But the cost of this treatment is a staggering ₹9 Crores.
We are an ordinary family with no means to arrange such an astronomical amount. We have already exhausted everything we had, and still, this amount feels completely out of reach. But as parents, we cannot give up on our son. We are fighting with all our strength to save him, but we cannot do this alone.
This is where we need your kindness, compassion, and support. Every single contribution, no matter how small, matters. It brings us one step closer to giving Vinayak the life he deserves — a life where he can play, laugh, walk, and dream just like other children.
🙏 I humbly request you to open your heart and support us in this battle for Vinayak’s life. Your donation is not just money — it is hope, it is strength, and it is the miracle that can save our child.
✨ Please donate generously and share this fundraiser with your friends, family, and networks. Your act of kindness today can give my son a tomorrow.
We are forever grateful for your prayers, support, and good wishes in this hour of need.
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.