You wait for that perfect moment when your baby starts to crawl. It becomes your dream to see your child take his first steps. No matter how busy life has been, your eyes always wander to the cradle to see your tiny, cute baby surrounded by toys. Even if he doesn’t respond, that little giggle says it all. The day I held my newborn in my arms, I didn’t know my life was about to change forever.

My name is Alok Kumar Dwivedi, and my baby boy, Vinayak Dwivedi, is 14 months old. Sadly, Vinayak’s health is deteriorating day by day. He struggles to crawl, stand, or sit properly, and even the smallest physical activity leaves him exhausted.

The reason?

Spinal Muscular Atrophy (SMA) – Type 2.

SMA is a rare genetic disorder that severely affects a child’s muscles. It causes difficulty in breathing, eating, swallowing, sitting, and moving.

This condition occurs due to mutations in the SMN1 gene, which is essential for producing the SMN protein. Without enough of this protein, motor neurons (the nerve cells that carry signals from the brain to the muscles) degenerate, causing muscles to weaken and waste away.

Is there a cure?

Yes, there is one life-saving treatment. The U.S. FDA (Food & Drug Administration) has approved Zolgensma, a gene therapy that can treat SMA. But the cost is overwhelming, ₹9 Crores.

My little Vinayak needs this life-saving drug. The treatment is extremely expensive, but with your support, nothing is impossible.

I humbly request each one of you to come forward and help my son grow into a healthy child.

Here’s how you can help:

• Donate to Vinayak’s treatment through ImpactGuru.

• Share his story with your friends, family, and on social media to bring more support.

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आप इस तरह मदद कर सकते हैं:

इम्पैक्टगुरु के माध्यम से विनायक के इलाज के लिए दान करें।

ज़्यादा सहयोग पाने के लिए उसकी कहानी अपने दोस्तों, परिवार और सोशल मीडिया पर साझा करें।