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Support Vinayak Dwivedi

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Give Hope to Baby Vinayak – He Needs Zolgensma Treatment Worth ₹16cr

Give Hope to Baby Vinayak – He Needs Zolgensma Treatment Worth ₹16cr

AK
Campaigner Details
Impactguru Verified

Alok Kumar
Varanasi Uttar Pradesh Contact
VD
Beneficiary Details
Impactguru Impactguru

Vinayak Dwivedi
Child of Alok Kumar
Patient receiving treatment at home

of $ 1,927,711

599 Donors
Funds will be transferred for patient's treatment
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supportvina20@yesbank
Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.

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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.

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Use this code CAM6CV235 to get an additional contribution of up to ₹1000 by acknowledging your transaction through the Donation App.

AK
Campaigner Details
Impactguru Verified

Alok Kumar
Varanasi Uttar Pradesh | Contact
VD
Beneficiary Details
Impactguru Impactguru

Vinayak Dwivedi
Child of Alok Kumar
Patient receiving treatment at home

Story


My name is Alok Kumar Dwivedi, and with a heavy heart, I am reaching out to you today to save my 13-month-old son, Vinayak Dwivedi. He has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a rare and life-threatening genetic disorder that weakens the muscles and robs children of the ability to walk, swallow, and even breathe on their own.


Vinayak is just a baby, but he has already endured more pain and suffering than most of us can imagine. While children his age should be learning to take their first steps, Vinayak struggles with every simple movement. Watching him lie helplessly, unable to move freely, breaks our hearts every single day.


Doctors have told us that there is only one treatment that can save his life — the world’s most expensive drug, Zolgensma. It is a one-time gene therapy that can stop the progression of this cruel disease and give Vinayak the chance to live like a normal child. But the cost of this treatment is a staggering ₹9 Crores.


We are an ordinary family with no means to arrange such an astronomical amount. We have already exhausted everything we had, and still, this amount feels completely out of reach. But as parents, we cannot give up on our son. We are fighting with all our strength to save him, but we cannot do this alone.


This is where we need your kindness, compassion, and support. Every single contribution, no matter how small, matters. It brings us one step closer to giving Vinayak the life he deserves — a life where he can play, laugh, walk, and dream just like other children.


🙏 I humbly request you to open your heart and support us in this battle for Vinayak’s life. Your donation is not just money — it is hope, it is strength, and it is the miracle that can save our child.


✨ Please donate generously and share this fundraiser with your friends, family, and networks. Your act of kindness today can give my son a tomorrow.

We are forever grateful for your prayers, support, and good wishes in this hour of need.

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
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