Garv’s Battle with Duchenne Muscular Dystrophy: A Story of Hope and Resilience
Garv Garg, a bright and determined 14-year-old boy from Delhi, is fighting a rare and relentless genetic disorder called Duchenne Muscular Dystrophy (DMD). The son of Dr. Vivek Garg, a renowned eye specialist at Max Healthcare, and Dr. Madhu Garg, a respected gynecologist, Garv’s life has been a testament to courage and resilience. DMD is a progressive condition that weakens muscles over time, accelerates aging, and often limits life expectancy to 25-30 years if left untreated. For Garv, even simple tasks like walking or holding a pencil are becoming increasingly difficult. Despite these challenges, Garv dreams of a future filled with possibilities—a future that now hinges on a groundbreaking treatment.
A Race Against Time
DMD is caused by a genetic mutation that prevents the body from producing dystrophin, a protein essential for muscle function. Over time, the muscles deteriorate, leading to severe physical limitations and life-threatening complications, particularly affecting the heart and lungs. Garv’s parents have watched their son’s condition progress with heavy hearts, but they have never given up hope. They have explored every possible treatment option, determined to give Garv a chance at a longer, healthier life.
A Historic Opportunity
In a historic milestone for medical science, Garv has been approved to receive ELEVIDYS, a cutting-edge gene therapy that could potentially halt the progression of DMD. This therapy, which replaces the faulty gene responsible for the condition, offers a glimmer of hope for Garv and others battling DMD. Scheduled for April at a specialized hospital in the UAE, this treatment could be life-changing. However, the cost is staggering—$3.2 million (approximately ₹28 crore).
Garv’s parents have already exhausted their life savings, taken loans against their properties, and sought support from international charities. So far, they have managed to arrange ₹22.25 crore, leaving a gap of ₹5.75 crore. Time is of the essence, as the therapy’s effectiveness diminishes as the disease progresses.
A Community Rallies Together
The doctors and employees of Max Healthcare, where Garv’s father works, have stepped up in an extraordinary show of solidarity. They have committed to raising an additional ₹2.5 crore, reducing the deficit to ₹3.25 crore. This collective effort reflects the power of community and the shared belief that every child deserves a chance to thrive.
How You Can Help
Garv’s story is not just about one boy’s fight against a rare disease—it’s about the power of hope, science, and human kindness. Every contribution, no matter how small, brings Garv closer to receiving this life-saving treatment. By donating or sharing his story, you can help bridge the remaining gap and give Garv the opportunity to live a healthier, more fulfilling life.
Imagine the impact of your support: Garv could go on to achieve his dreams, inspire others, and prove that even the most daunting challenges can be overcome with determination and collective effort.
A Message of Gratitude
Garv’s family is deeply grateful for the outpouring of support they have received so far. They believe that with continued generosity and awareness, they can secure the funds needed for his treatment. Together, we can rewrite Garv’s story—one of hope, resilience, and a brighter future.
Thank you for your kindness, generosity, and belief in the power of possibility. Let’s stand with Garv and give him the chance he deserves.
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
