"Neha Can No Longer Walk. SMA Is Stealing Our Little Girl's Strength Every Day!"
At just over 4 years old, little Neha can no longer walk. A child who should be running, playing and discovering the world around her is now facing a frightening reality, her muscles are becoming severely weak because of Spinal Muscular Atrophy (SMA).
Neha was diagnosed with SMA type 3, around two years ago. Since then, her condition has continued to worsen. Because of this rare genetic disorder, she cannot walk, and her family fears what this progressive weakness could take away from her next. As her muscles weaken further, everyday movements can become increasingly difficult, leaving her more dependent on those around her.
For Neha’s family, every passing day feels like a race against time…
“My daughter is our bright child, she deserves to live a normal life,” says her mother, Niva. “All we want is to see her live healthy, a life without pain,” adds her father, Sanatan.
Still, Neha’s family refuses to let financial hardship decide her future. They want to arrange a ₹1.5 crore injection from Indonesia, hoping to provide it within the next 5 years. For a family whose livelihood depends on daily wages, this amount is almost impossible to manage alone.
“Early access to the injection is critical as every day of delay risks further loss of strength,” says her doctors.
There are eight members in her family, her parents, grandparents, uncle, aunt and sister.
Neha’s father is the only earning member of the family, working tirelessly in a mill through the mounting expenses of his daughter’s condition.
Her grandparents, mother, uncle and aunt have been trying their best as a family to support her. The income barely supports the family’s daily needs, yet they have already spent around ₹48 lakh on Risdiplam for Neha’s treatment. Their travel and physiotherapy expenses have added to the burden.
Neha’s loved ones dream of watching her grow up. They want her to experience a childhood where her condition does not define every moment of her life. Neha has already lost the ability to walk. Her family cannot afford to wait until SMA takes even more of her strength.
Help them fight for the treatment little Neha deserves.
How can you help her?
Donate to her treatment.
By donating, you help ensure that she receives the treatment that saves her life.
Share her story with your family and friends.
By sharing her story with your loved ones and friends, you will help to amplify her voice to those who care and are willing to donate.
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নেহা আর হাঁটতে পারে না। SMA প্রতিদিন তার শক্তি কেড়ে নিচ্ছে!
প্রায় দুই বছর আগে নেহার ‘এসএমএ টাইপ ৩’ (SMA type 3) রোগটি শনাক্ত হয়। তখন থেকেই তার শারীরিক অবস্থার ক্রমাগত অবনতি হচ্ছে। এই বিরল জিনগত ব্যাধির কারণে সে হাঁটতে পারে না; আর তার পরিবার শঙ্কিত যে, এই ক্রমেই বাড়তে থাকা দুর্বলতা ভবিষ্যতে তার কাছ থেকে আর কী কী কেড়ে নেবে।
আপনি কীভাবে তাকে সাহায্য করতে পারেন?
তার চিকিৎসার জন্য অনুদান দিন।
অনুদান দেওয়ার মাধ্যমে আপনি নিশ্চিত করতে সাহায্য করবেন যে, সে জীবন রক্ষাকারী প্রয়োজনীয় চিকিৎসাটি পায়।
পরিবার ও বন্ধুদের সাথে তার গল্পটি শেয়ার করুন।
প্রিয়জন ও বন্ধুদের সাথে তার গল্প শেয়ার করার মাধ্যমে আপনি এমন মানুষদের কাছে তার কথা পৌঁছে দিতে সাহায্য করবেন, যারা সহানুভূতিশীল এবং অনুদান দিতে ইচ্ছুক।
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.