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Help Save Little Moksha: Urgent Support Needed For SMA Type 1 Treatment.

TAX BENEFITS

Indian tax benefits available

URGENT

GALLERY (2)

Campaigner Details

Verified

Phone Verified
Email Verified
Identity Verified

Bharath Naidu

Bengaluru Karnataka Contact

Beneficiary Details

Verified

Phone Verified
Identity Verified

Moksha

Child of Bharath Naidu

Patient Hospitalised at

Cloudnine Hospital - HRBR | Best Maternity & Pregnancy Centre , Bengaluru

of $ 983,607

3,965 Donors

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Campaigner and/or Beneficiary verified
Donations will be transferred to the hospital/ patient directly
Case verified by the hospital/doctor/medical center
Medical documents submitted
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Funds will be transferred for patient's treatment

Every social media share can bring $80

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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.

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For payment done via UPI

Campaigner Details

Verified

Phone Verified
Email Verified
Identity Verified

Bharath Naidu

Bengaluru Karnataka | Contact

Beneficiary Details

Verified

Phone Verified
Identity Verified

Moksha

Child of Bharath Naidu

Patient Hospitalised at

Cloudnine Hospital - HRBR | Best Maternity & Pregnancy Centre , Bengaluru

Latest Update

Dear Donors,

Moksha is currently at home and continuing treatment on an outpatient basis.

Her medication and follow-up consultations are ongoing as advised by the medical team.

She is scheduled to visit the doctor in July for further evaluation.

We remain hopeful for her continued improvement and recovery.

Your generous support is greatly appreciated.

Please consider donating and sharing her appeal.

Story

Save Baby Moksha: Life-Saving SMA Gene Therapy Needed

Patient Information:

My name is Bharath Kumar D M, and I am raising funds for my precious precious son, Moksha, who has been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a rare and life-threatening genetic condition. Moksha is an innocent child with her entire life ahead of him, yet every day is a battle for survival. As parents, watching our baby struggle with basic movements and breathing has been unimaginably painful.

Cause and Treatment Information:

SMA Type 1 is a severe neuromuscular disorder that weakens muscles and affects vital functions like breathing and swallowing. Doctors have advised Zolgensma (onasemnogene abeparvovec-xioi), a one-time gene therapy that can stop the progression of the disease and give Layla a chance at a normal life. She is currently under medical care at Cloudnine Hospital, Bengaluru, where specialists are closely monitoring her condition.

Treatment Costing:

While we have already spent some amount on initial tests and supportive care, the cost of Zolgensma treatment is ₹16,00,00,000, which is far beyond our financial capacity. Despite exploring every possible option, arranging such a massive amount on our own is impossible.

How You Can Help:

We humbly request support from kind-hearted people. Every contribution—big or small—brings us closer to saving Moksha’s life. If you’re unable to donate, sharing this appeal can also make a huge difference.

Father’s Appeal:

As Moksha’s father, it breaks my heart to ask for help, but my child’s life depends on it. Your kindness can give my daughter a future.

From the bottom of my heart, thank you for your prayers, support, and generosity.

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The funds are currently being raised for the gene therapy treatment Zolgensma. However, the family may opt for an alternative treatment that is more cost-effective.

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.

NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.

LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.

TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.

UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.

PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.

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