"My day's wages barely help me put food on the table. Now, I am fighting for something far bigger, my son's life." - Soribuddin Miah, father.
When Sifat, was born, our little family had big dreams for him. We wanted to watch him crawl, take his first steps, play with his elder sister and call us, “Mama” and “Papa"
But unlike most babies, our little Sifat could barely move his body. He has severe weakness in his tiny muscles, very poor neck strength and cannot even move without help from his mother. At just 7 months old, my son depends on costly medicines to stay alive.
The doctors told us that Sifat has a rare disorder, “Spinal Muscular Atrophy (SMA) Type 1, it is slowly weakening every muscle in his tiny boy.”
Our humble family watches Sifat try his best, but he can barely even move. We were told that he needs regular physiotherapy and medicines just to keep fighting.
As a daily wage agricultural labourer, I earn just enough to feed my family. I come home and watch my little boy struggle with something that should come naturally to every child, it breaks my heart to see him like this.
Doctors have told us that one-time ₹10 crore Gene Therapy (Zolgensma) is Sifat's best chance at life. “Until then, the child must continue physiotherapy and Risdiplam medication to manage the condition.”, said the doctors.
My 8 year old daughter says to me, “Papa, when can I play with baby? Why is he not able to hug me?” Her words bring tears to my eyes. I wish I could help my son heal as soon as possible but I cannot do it alone.
To continue Sifat’s treatment, we sold our motorcycle and even a small piece of our land. We have already spent everything we had. But the ₹10 crore treatment for my son is not just a huge amount, it is impossible to reach without the kindness of others. As a father, I cannot give up on my son….
“One day, I hope my son stands on his own feet, fulfills his dreams, and becomes a person who can make a difference to society.” - Soribuddin Miah, father.
I fold my hopes into this appeal and ask for your generosity. Please donate whatever you can and share Sifat's story with others. Your support could give my little boy the chance to grow up, live a healthy childhood and have a future ahead of him.
Help my son receive life-saving treatment before it’s too late.
How can you help Sifat?
Donate to his treatment.
By donating, you help ensure that he receives the treatment that saves his life.
Share his story with your family and friends.
By sharing his story with your loved ones and friends, you will help to amplify his voice to those who care and are willing to donate.
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৭ মাস বয়সী সিফাত ‘স্পাইনাল মাসকুলার অ্যাট্রোফি (SMA) টাইপ ১’-এর মারাত্মক প্রভাবের বিরুদ্ধে লড়াই করছেতার জীবন বাঁচাতে চিকিৎসকরা জরুরিভিত্তিতে এককালীন জিন থেরাপি (জোলজেনসমা)-র পরামর্শ দিয়েছেন।বেঁচে থাকার জন্য তাকে নিয়মিত মাসিক ফিজিওথেরাপি এবং ‘রিসডিপ্লাম’ (Risdiplam) ওষুধের ওপর নির্ভর করতে হচ্ছে।তার সুস্থতার জন্য আপনার সহায়তা অত্যন্ত জরুরি। অনুগ্রহ করে অনুদান দিন এবং তার এই লড়াইয়ের কথা সবার সাথে শেয়ার করুন
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.