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SMA Is Stealing My Little Gargi’s Strength. Can You Help?

SMA Is Stealing My Little Gargi’s Strength. Can You Help?

SJ
Campaigner Details
Impactguru Verified

Sandeep Jadhav
Pune Maharashtra Contact
GJ
Beneficiary Details
Impactguru Verified

Gargi Jadhav
Child of Sandeep Jadhav
Patient is currently not admitted

of $ 1,202,186

17,944 Donors
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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.
SJ
Campaigner Details
Impactguru Verified

Sandeep Jadhav
Pune Maharashtra | Contact
GJ
Beneficiary Details
Impactguru Verified

Gargi Jadhav
Child of Sandeep Jadhav
Patient is currently not admitted

Latest Update


Dear Donors,

Gargi Jadhav is currently not hospitalised and is continuing care under medical supervision.

Doctors have advised an injection as part of her treatment, but it is currently pending due to a shortage of funds.

Your generous support can help arrange the required medical expenses and ensure timely treatment.

Every donation brings hope and makes a meaningful difference.

Story


“She only wants to play with her brother. I want to give my little girl the chance to enjoy her childhood.”- Sonali, mother.


Our little Gargi recently turned one year old, but instead of celebrating her first birthday with dreams for the year ahead, our family had just one heartfelt wish, to see her grow up.


Most babies her age are discovering the world, and growing stronger every day. But Gargi faces a rare battle, a disorder called Spinal Muscular Atrophy (SMA Type 1)


What is happening to her tiny body?

She tries to move. She tries to play. She tries her best. But her tiny body struggles to keep up with her. SMA Type 1 steals Gargi’s muscle strength, making it difficult for her to move or play and, soon, even swallow or breathe.


As her father, it breaks me to see her wanting to play with her brother but being held back by a disorder she cannot understand. I keep imagining the childhood she should have, running around the house, playing with her brother, laughing without her body holding her back.


But Gargi urgently needs Zolgensma, a potentially life-saving gene therapy costing ₹11 crore. The treatment is not available in India and must be imported from the USA. The clock is ticking for Gargi as she needs the life-saving gene therapy as soon as possible to protect the strength she still has.


“I want to see my daughter grow up and have the life we wished for her.” - Sandeep, father.


For us, this is not just a treatment. It is a chance to protect the little strength Gargi still has and give her the childhood she deserves. But ₹11 crore is far beyond what our family can manage alone.


Our only hope lies in the support of kind people like you. Your donation could help my little girl play with her brother, grow stronger and have the chance to live the childhood she deserves.



How can you help her?

Donate to her treatment.

By donating, you help ensure that she receives the treatment that saves her life.


Share her story with your family and friends.

By sharing her story with your loved ones and friends, you will help to amplify her voice to those who care and are willing to donate.


*******

1 साल की गार्गी SMA टाइप 1 से लड़ रही है, जो धीरे-धीरे उसके नन्हे शरीर की ताकत छीन रही है।

वह अपने बड़े भाई के साथ खेलने का सपना देखती है, लेकिन उसके लिए छोटी-छोटी हरकतें करना भी मुश्किल होता जा रहा है।

बेबी गार्गी को ₹11 करोड़ की ज़ोलजेन्स्मा (Zolgensma) दवा की ज़रूरत है, जो एक ऐसी जीन थेरेपी है जिससे उसकी जान बच सकती है और इसे USA से मंगाना होगा।

आपका सहयोग गार्गी को मज़बूत बनने, आज़ादी से खेलने और वह बचपन जीने में मदद कर सकता है जिसकी वह हकदार है।


आप उसकी मदद कैसे कर सकते हैं?

उसके इलाज के लिए दान करें।

दान करके, आप यह पक्का करने में मदद करते हैं कि उसे वह इलाज मिले जिससे उसकी जान बच सके।


उसकी कहानी अपने परिवार और दोस्तों के साथ शेयर करें।

अपने करीबियों और दोस्तों के साथ उसकी कहानी शेयर करके, आप उसकी आवाज़ उन लोगों तक पहुँचाने में मदद करेंगे जो परवाह करते हैं और दान करने के इच्छुक हैं।

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances: i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the treatment,
Impact Guru shall have the discretion to use such surplus funds to allocate to i) other patients on Impact Guru for their life-saving treatment and/or donors to provide health benefits with object to maximize social impact; and/or ii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
Documents

Updates(1)


#1 (18 Aug, 2026) - From Sandeep Jadhav

Dear Donors,

Gargi Jadhav is currently not hospitalised and is continuing care under medical supervision.

Doctors have advised an injection as part of her treatment, but it is currently pending due to a shortage of funds.

Your generous support can help arrange the required medical expenses and ensure timely treatment.

Every donation brings hope and makes a meaningful difference.

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