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Save Our 2-Month-Old Baby Fighting SMA

Save Our 2-Month-Old Baby Fighting SMA

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Campaigner Details
Impactguru Verified

Venkatesh Pallapothala
Bengaluru Karnataka Contact
BO
Beneficiary Details
Impactguru Impactguru

Baby of anusha
Child of Venkatesh Pallapothala
Patient is currently not admitted

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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.
VP
Campaigner Details
Impactguru Verified

Venkatesh Pallapothala
Bengaluru Karnataka | Contact
BO
Beneficiary Details
Impactguru Impactguru

Baby of anusha
Child of Venkatesh Pallapothala
Patient is currently not admitted

Story


Our 2-Month-Old Baby Is Fighting for His Life… Please Save Him

We are Pallapothala Venkatesh and Anusha…

parents to our precious 2 month old baby boy.

At this age, he should be smiling at us for the first time…

sleeping peacefully in our arms…

filling our home with happiness.

But instead… our days and nights are filled with fear.


Our tiny baby has been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 a rare genetic disease that is slowly taking away his strength.

This cruel condition weakens his muscles day by day… making it harder for him to move, swallow, and even breathe.

Every time we look at him, we see a silent struggle.

His tiny chest rises and falls… and we hold our breath, praying it doesn’t stop.


As a mother, I feel helpless watching my baby suffer. I carry him for 9 months, dreamed of this moment… but today, I can only hold him and cry, praying he stays with me.

As a father, it breaks me that I cannot protect my son. I should be his shield… but today, I am begging for help to save his life.


Doctors have told us there is still hope ,a life-saving treatment that can stop this disease and give our baby a chance to live.

But the cost is ₹9.5 crore… an amount we can never afford.

We have already used everything we had… our savings, our strength, our hope…

but time is slipping away from us.


Every second matters.

Every breath he takes feels like a miracle.

And every moment, we fear we might lose him…

🙏 With folded hands, we beg you…


Please help us save our baby.

Your support , no matter how small ,can bring him closer to the treatment he desperately needs.

If you cannot donate, please share this message. Your one share could reach someone who can save our child’s life.

We don’t want to lose our baby before we even hear his laughter…

before he takes his first step…

before he calls us “Amma” and “Papa.”


Please don’t let our baby’s life end before it truly begins.

With tears in our eyes and hope in our hearts,


Venkatesh & Anusha


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మా 2 నెలల చిన్నారి ప్రాణాల కోసం పోరాడుతున్నాడు… దయచేసి అతన్ని కాపాడండి

మేము పల్లపోతుల వెంకటేష్ మరియు అనుష…

మా అమూల్యమైన 2 నెలల చిన్నారి బిడ్డకు తల్లిదండ్రులం.

ఈ వయసులో అతను మాతో మొదటి సారి నవ్వుతూ ఉండాలి…

మా చేతుల్లో ప్రశాంతంగా నిద్రపోతూ ఉండాలి…

మా ఇంటిని ఆనందంతో నింపుతూ ఉండాలి…

కానీ ఇప్పుడు… మా రోజులు, రాత్రులు భయంతో నిండిపోయాయి.


మా చిన్నారి బిడ్డకు Spinal Muscular Atrophy (SMA) Type 1 అనే అరుదైన జన్యు వ్యాధి వచ్చింది.

ఈ క్రూరమైన వ్యాధి అతని కండరాలను రోజుకో రోజు బలహీనపరుస్తోంది…

అతనికి కదలడం, మింగడం, ఇంకా శ్వాస తీసుకోవడం కూడా కష్టంగా మారుతోంది.

ప్రతి సారి అతన్ని చూస్తే… అతని నిశ్శబ్ద పోరాటం కనిపిస్తుంది.

అతని చిన్న ఛాతీ పైకి దిగిపోతుంటే… అది ఆగిపోకూడదని మేము గుండెల్లో ప్రార్థిస్తూ ఉంటాం.


ఒక తల్లిగా, నా బిడ్డ ఇలా బాధపడుతుండటం చూడలేకపోతున్నాను…

9 నెలలు మోసుకుని, ఎన్నో కలలు కంటూ ఎదురు చూసిన ఈ క్షణం…

ఇప్పుడు నా చేతుల్లో అతన్ని పట్టుకుని ఏడవడం మాత్రమే మిగిలింది.

ఒక తండ్రిగా, నా కొడుకును రక్షించలేకపోవడం నా హృదయాన్ని ముక్కలుగా చేస్తోంది…

నేను అతనికి బలంగా ఉండాలి… కానీ ఇప్పుడు అతని ప్రాణాల కోసం ప్రపంచాన్ని అడుగుతున్నాను.

డాక్టర్లు ఇంకా ఒక ఆశ ఉందని చెప్పారు —

ఈ వ్యాధిని ఆపి, మా బిడ్డకు సాధారణ జీవితం ఇచ్చే చికిత్స ఉంది.


కానీ ఆ చికిత్స ఖర్చు ₹9.5 కోట్లు… అది మా వల్ల ఎప్పటికీ సాధ్యం కాదు.

మా దగ్గర ఉన్న ప్రతిదీ ఖర్చు చేశాం…

మా పొదుపులు, మా శక్తి, మా ఆశలు…

కానీ సమయం మమ్మల్ని వదిలిపోతోంది.


ప్రతి క్షణం విలువైనది…

అతను తీసుకునే ప్రతి శ్వాస ఒక అద్భుతంలా అనిపిస్తోంది…

ప్రతి నిమిషం, అతన్ని కోల్పోతామేమో అన్న భయం మమ్మల్ని వెంటాడుతోంది…

చేతులు జోడించి మిమ్మల్ని వేడుకుంటున్నాం…

దయచేసి మా బిడ్డను కాపాడండి.

మీ సహాయం — చిన్నదైనా పెద్దదైనా —

అతనికి అవసరమైన చికిత్సకు ఒక అడుగు దగ్గర చేస్తుంది.

మీరు సహాయం చేయలేకపోతే… దయచేసి ఈ సందేశాన్ని పంచుకోండి.

మీ ఒక్క షేర్ మా బిడ్డ ప్రాణాలను కాపాడే వ్యక్తి దగ్గరకు తీసుకెళ్లవచ్చు.

మా బిడ్డ నవ్వు చూడకముందే అతన్ని కోల్పోవాలనుకోవడం లేదు…

అతను మొదటి అడుగు వేయకముందే…

మమ్మల్ని “అమ్మా”, “నాన్నా” అని పిలవకముందే…


దయచేసి మా బిడ్డ జీవితం మొదలయ్యేలోపే ముగియనివ్వకండి.

కన్నీళ్లతో, ఆశతో, ప్రార్థనలతో,

వెంకటేష్ & అనుష


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ನಮ್ಮ 2 ತಿಂಗಳ ಮಗು ತನ್ನ ಜೀವಕ್ಕಾಗಿ ಹೋರಾಡುತ್ತಿದೆ… ದಯವಿಟ್ಟು ಅವನನ್ನು ಉಳಿಸಿ

ನಾವು ಪಲ್ಲಪೋತుల ವೆಂಕಟೇಶ್ ಮತ್ತು ಅನುಷಾ…

ನಮ್ಮ ಅಮೂಲ್ಯವಾದ 2 ತಿಂಗಳ ಮಗು ಮಗುವಿನ ತಾಯಿ-ತಂದೆಯವರು.

ಈ ವಯಸ್ಸಿನಲ್ಲಿ ಅವನು ಮೊದಲ ಬಾರಿ ನಗುತ್ತಿರಬೇಕು…

ನಮ್ಮ ಮಡಿಲಲ್ಲಿ ಶಾಂತವಾಗಿ ನಿದ್ರೆ ಮಾಡುತ್ತಿರಬೇಕು…

ನಮ್ಮ ಮನೆಯನ್ನು ಸಂತೋಷದಿಂದ ತುಂಬಿಸುತ್ತಿರಬೇಕು…

ಆದರೆ ಈಗ… ನಮ್ಮ ದಿನಗಳು ಮತ್ತು ರಾತ್ರಿ ಭಯದಿಂದ ತುಂಬಿವೆ.

ನಮ್ಮ ಪುಟ್ಟ ಮಗುವಿಗೆ Spinal Muscular Atrophy (SMA) Type 1 ಎಂಬ ಅಪರೂಪದ ಜನ್ಯ ರೋಗ ಬಂದಿದೆ.


ಈ ಕ್ರೂರ ರೋಗವು ಅವನ ಸ್ನಾಯುಗಳನ್ನು ದಿನದಿಂದ ದಿನಕ್ಕೆ ದುರ್ಬಲಗೊಳಿಸುತ್ತಿದೆ…

ಅವನಿಗೆ ಚಲಿಸುವುದು, ನುಂಗುವುದು ಮತ್ತು ಉಸಿರಾಡುವುದು ಕೂಡ ಕಷ್ಟವಾಗುತ್ತಿದೆ.

ಪ್ರತಿ ಬಾರಿ ನಾವು ಅವನನ್ನು ನೋಡಿದಾಗ… ಅವನ ಮೌನ ಹೋರಾಟವನ್ನು ಕಾಣುತ್ತೇವೆ.

ಅವನ ಪುಟ್ಟ ಎದೆ ಏರುತ್ತಾ ಇಳಿಯುತ್ತಾ ಇರುವುದು… ಅದು ನಿಲ್ಲಬಾರದೆಂದು ನಾವು ಪ್ರಾರ್ಥಿಸುತ್ತೇವೆ.

ಒಬ್ಬ ತಾಯಿಯಾಗಿ, ನನ್ನ ಮಗುವಿನ ನೋವನ್ನು ನೋಡಲು ನನಗೆ ಸಾಧ್ಯವಾಗುತ್ತಿಲ್ಲ…

9 ತಿಂಗಳು ಹೊತ್ತು, ಈ ಕ್ಷಣಕ್ಕಾಗಿ ಕನಸು ಕಂಡ ನಾನು…


ಇಂದು ಅವನನ್ನು ಹಿಡಿದು ಅಳುವುದರ ಹೊರತು ಏನೂ ಮಾಡಲಾಗುತ್ತಿಲ್ಲ.

ಒಬ್ಬ ತಂದೆಯಾಗ, ನನ್ನ ಮಗುವನ್ನು ರಕ್ಷಿಸಲು ಆಗದಿರುವುದು ನನ್ನ ಹೃದಯವನ್ನು ಮುರಿಯುತ್ತಿದೆ…

ನಾನು ಅವನಿಗೆ ಬಲವಾಗಿರಬೇಕು… ಆದರೆ ಇಂದು ಅವನ ಜೀವ ಉಳಿಸಲು ಜಗತ್ತಿನ ಮುಂದೆ ಬೇಡಿಕೊಳ್ಳುತ್ತಿದ್ದೇನೆ.

ವೈದ್ಯರು ಇನ್ನೂ ಒಂದು ಆಶೆ ಇದೆ ಎಂದು ಹೇಳಿದ್ದಾರೆ —

ಈ ರೋಗವನ್ನು ತಡೆಯುವ ಮತ್ತು ನಮ್ಮ ಮಗುವಿಗೆ ಸಾಮಾನ್ಯ ಜೀವನ ನೀಡುವ ಚಿಕಿತ್ಸೆ ಇದೆ.

ಆದರೆ ಆ ಚಿಕಿತ್ಸೆಯ ವೆಚ್ಚ ₹9.5 ಕೋಟಿ… ಅದು ನಮ್ಮಿಂದ ಸಾಧ್ಯವಿಲ್ಲ.

ನಮ್ಮ ಬಳಿ ಇದ್ದ ಎಲ್ಲವನ್ನೂ ನಾವು ಬಳಸಿದ್ದೇವೆ…


ನಮ್ಮ ಉಳಿತಾಯ, ನಮ್ಮ ಶಕ್ತಿ, ನಮ್ಮ ಆಶೆ…

ಆದರೆ ಸಮಯ ನಮ್ಮ ಕೈಯಿಂದ ಜಾರುತ್ತಿದೆ.

ಪ್ರತಿ ಕ್ಷಣವೂ ಅಮೂಲ್ಯ.

ಅವನು ತೆಗೆದುಕೊಳ್ಳುವ ಪ್ರತಿಯೊಂದು ಉಸಿರು ಒಂದು ಅದ್ಭುತದಂತೆ ಅನಿಸುತ್ತದೆ.

ಪ್ರತಿ ಕ್ಷಣವೂ ಅವನನ್ನು ಕಳೆದುಕೊಳ್ಳುವ ಭಯ ನಮ್ಮನ್ನು ಕಾಡುತ್ತಿದೆ…

ಕೈಮುಗಿದು ನಾವು ನಿಮ್ಮಲ್ಲಿ ಬೇಡಿಕೊಳ್ಳುತ್ತೇವೆ…

ದಯವಿಟ್ಟು ನಮ್ಮ ಮಗುವನ್ನು ಉಳಿಸಿ.

ನಿಮ್ಮ ಸಹಾಯ — ಚಿಕ್ಕದಾದರೂ ದೊಡ್ಡದಾದರೂ —

ಅವನಿಗೆ ಅಗತ್ಯವಿರುವ ಚಿಕಿತ್ಸೆಗೆ ಒಂದು ಹೆಜ್ಜೆ ಹತ್ತಿರ ಮಾಡುತ್ತದೆ.


ನೀವು ಸಹಾಯ ಮಾಡಲು ಸಾಧ್ಯವಾಗದಿದ್ದರೆ… ದಯವಿಟ್ಟು ಈ ಸಂದೇಶವನ್ನು ಹಂಚಿಕೊಳ್ಳಿ.

ನಿಮ್ಮ ಒಂದು ಹಂಚಿಕೆ ನಮ್ಮ ಮಗುವಿನ ಜೀವವನ್ನು ಉಳಿಸಬಲ್ಲ ವ್ಯಕ್ತಿಯವರೆಗೆ ತಲುಪಬಹುದು.

ನಮ್ಮ ಮಗುವಿನ ನಗು ಕೇಳುವ ಮುನ್ನವೇ ಅವನನ್ನು ಕಳೆದುಕೊಳ್ಳಲು ನಾವು ಬಯಸುವುದಿಲ್ಲ…

ಅವನು ಮೊದಲ ಹೆಜ್ಜೆ ಇಡುವ ಮುನ್ನವೇ…

ನಮ್ಮನ್ನು “ಅಮ್ಮಾ”, “ಅಪ್ಪಾ” ಎಂದು ಕರೆಯುವ ಮುನ್ನವೇ…


ದಯವಿಟ್ಟು ನಮ್ಮ ಮಗುವಿನ ಜೀವನ ಪ್ರಾರಂಭವಾಗುವ ಮುನ್ನವೇ ಮುಗಿಯದಂತೆ ಮಾಡಿ.

ಕಣ್ಣೀರು, ಆಶೆ ಮತ್ತು ಪ್ರಾರ್ಥನೆಗಳೊಂದಿಗೆ,

ವೆಂಕಟೇಶ್ & ಅನುಷಾ

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
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