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Fundraiser ended on Mar 18, 2026

Help Aryan Fight against SMA

TAX BENEFITS

Indian tax benefits available

URGENT

Campaigner Details

Verified

Phone Verified
Email Verified
Identity Verified

Nirnay Murthy

Bengaluru Karnataka Contact

Beneficiary Details

Verified

Phone Verified
Identity Verified

Aryan

Child of Nirnay Murthy

Patient is currently not admitted

of $ 218,579

5,468 Donors

Funds will be transferred for patient's treatment

Campaigner Details

Verified

Phone Verified
Email Verified
Identity Verified

Nirnay Murthy

Bengaluru Karnataka | Contact

Beneficiary Details

Verified

Phone Verified
Identity Verified

Aryan

Child of Nirnay Murthy

Patient is currently not admitted

Latest Update

Dear Donors,

Thank you for your unwavering support and donations to Aryan Murthy.

This is an update regarding the utilization of funds.

A part of the funds will be reimbursed for the travel expenses incurred for his medical treatment against the bills provided.

We are extremely grateful for your kindness and generosity.

Story

Dear friends with big hearts,

We are Nirnay and Lalrinmawii, and we’re the parents of Aryan, our sweet little boy who just turned 3. It’s really hard for us to write this, but we want to share what our dear boy has been going through.

Nearly a year ago, we saw Aryan struggling to do simple things that other children do easily. We hoped it was nothing serious, but after a lot of doctor visits, we were told Aryan has Spinal Muscular Atrophy type 2.

SMA is a tough illness. It slowly takes away Aryan’s ability to move his muscles and even makes it hard for him to breathe. When we learned about his condition, our hearts broke and we felt lost, not knowing what the future would hold for our little boy.

To help Aryan, his doctors first gave him a gene therapy drug called vesemnogene.

Aryan’s Treatment Plan

Vesemnogene, a gene therapy drug, delivers a healthy copy of the missing gene to his body. This helps his body make the protein needed for muscle strength and movement.
His doctors now recommend adding another treatment called risdiplam as part of a dual therapy approach.

How the Treatment Helps

Vesemnogene helps by giving Aryan’s cells the gene they are missing, so his body can start making the important SMN protein that keeps his muscles and nerves healthy.
Risdiplam works differently: it helps Aryan’s body use a backup gene (called SMN2) to make even more of the SMN protein.
By using both treatments together, Aryan can get the most SMN protein possible, which gives him a better chance to move, grow, and stay healthy.

Why Risdiplam Is So Important

Risdiplam is the only SMA treatment that can be taken by mouth at home, making it much easier for Aryan.
It helps not just the nerves in the brain and spine, but also muscles and other organs throughout the body.
Studies show that risdiplam can help children with SMA gain strength, reach new milestones.
Aryan needs to take risdiplam for at least 2 years, and it is very expensive, costing ₹60 lakhs per year.

Why We Need Your Support

We are raising ₹2 Crore for Aryan’s risdiplam treatment along with his physiotherapy and other medical expenses, which is crucial for his continued progress.
Every contribution helps give Aryan the chance to grow up stronger and healthier.

We are not giving up. We don’t want money to decide what happens to our little boy. That’s why we are asking for your help.

Your donation can make a big difference for Aryan. With your help, he can get the treatment he needs to get better. We want Aryan to be able to smile, play, and enjoy his childhood, just like other kids.

Please give with open hearts and share Aryan’s story with your friends and family.

Thank you for caring about Aryan and our family. Your support and prayers mean so much to us. With your help, we believe Aryan can have a happy future.

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.

NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.

LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.

TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.

UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.

PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.

Documents

Updates(8)

#1 (28 Mar, 2026) - From Impactguru

Dear Donors,

Thank you for your unwavering support and donations to Aryan Murthy.

This is an update regarding the utilization of funds.

A part of the funds will be reimbursed for the travel expenses incurred for his medical treatment against the bills provided.

We are extremely grateful for your kindness and generosity.

#2 (18 Mar, 2026) - From Nirnay Murthy

I would like to request the closure of the fundraiser account for my son, Aryan, as we have successfully achieved the required treatment target.

His current condition has improved significantly, and he is now able to stand independently for approximately 1.5 to 2 hours.

Going forward, I will bear all his treatment expenses. The remaining funds will be utilized towards Aryan’s future medical bills.

Thank you for your support.

Sincerely,

Dr. N. Nirnay Murthy

Father of Aryan Murthy

#3 (05 Jun, 2025) - From Nirnay Murthy

Dear Donors,

Aryan has Spinal Muscular Atrophy (SMA), a condition that causes his muscles to be weak. While other children his age are running and playing, Aryan struggles just to get up and move.

His family has done everything possible for him. Aryan has already received Vesemnogene, a gene therapy drug, which was a big step in his treatment. Now, as a dual therapy approach, doctors have advised adding Risdiplam along with physiotherapy to help his muscles grow stronger.

Aryan’s Risdiplam alone costs ₹60 lakhs each year. With physiotherapy and other medical expenses, the total reaches ₹2 crore.

Aryan’s parents believe in hope, in kindness, and in the power of people coming together. Please help Aryan keep fighting. Your donations and continued support are what he needs.

- Team ImpactGuru

#4 (19 May, 2025) - From Impactguru

Dear Donors, This is regarding an update on the utilization of collected funds on this campaign. It will be transferred to the pharmacy account towards the patient's medical treatment. Thank you for the support you have shown on this fundraiser.

#5 (18 Mar, 2025) - From Nirnay Murthy

Dear Donors,

Baby Aryan is braving through spinal muscular atrophy (SMA).

Oral medication Risdiplam and physiotherapy are his aides in his medical battle.

With your continued support and story shares, Aryan can continue his treatment and get healthier and stronger. Please contribute to Aryan.

#6 (01 Oct, 2024) - From Impactguru

#7 (05 Sep, 2024) - From Impactguru

#8 (07 Aug, 2024) - From Nirnay Murthy

Dear Donors,

Aryan, a 2-year-old diagnosed with SMA Type 2, is still on the long path of recovery.

His health condition remains unchanging, but he needs a substantial amount of funds for ZOLGENSMA treatment.

Please support Aryan and help him recover fully.