“A daughter is one of the most beautiful gifts this world has to give.” — Laurel Atherton
My Little Angel…
Hi, I am Rajnikant, Kumud’s father.
It's believed that the birth of a daughter fills a home with blessings, luck, and endless joy. Before Susmita was born, we were filled with excitement and a bit of nervousness. We dreamed about the day we would finally hold her in our arms and how her laughter would light up our home. We often found ourselves imagining her first steps and sweet giggles, wondering how she would change our lives. Each day felt like a countdown, and with every kick I felt, I knew our little girl was going to bring so much happiness and love into our world.
The day Susmita was born felt like a dream come true. When I first held her in my arms, it was as if my heart exploded with love and joy. At that moment, I knew she would forever change our lives, filling our home with laughter and light.
However, the day of joy and happiness soon turned into a shadow.
When my little one was just 9 months old, she was diagnosed with spinal muscular atrophy.
What Is SMA?
- SMA is a genetic neuromuscular disorder that affects motor neurons.
- It has several types, with Type 1 being the most severe.
- Causes progressive muscle weakness and affects mobility and breathing.
- Symptoms usually appear between 6 to 18 months of age.
- Treatments like Zolgensma and Spinraza can improve motor function.
“No matter the obstacles, my love for you will always be your strongest support. You are my miracle, and I will always fight for you.” - Rajnikant (Dad)
Please Help!
Despite facing numerous challenges, Kumud has shown the courage of a warrior, confronting every obstacle with all her strength and determination.
A drug called Zolgensma, worth ₹14 crores, could offer her a new beginning in her life.
We have done everything possible to save Kumud since she was 9 months old, investing all our resources to provide her with the best care and support.
Now, we are falling short of the financial means needed.
We are counting on you to lend a helping hand to our little one and help give her the life she deserves.
Disclaimer -
SMA is a progressive disease that causes Jaishvi's muscles to weaken over time. To prevent further deterioration and slow the progression, Jaishvi urgently needs the drug Risdiplam to preserve muscle function only if it is prescribed by the doctor, While the fundraising for Zolgensma is underway, starting Risdiplam immediately is a critical step to safeguard the child’s life and preserve muscle function.
Here is how you can give her a chance…
DONATE: Click on the donate now button to contribute to Kumud’s Zolgensma drug, which is worth crores.
SHARE: Share the story so it can reach out to more people and raise funds for my toddlers second chance at life.
कृपया मदद करे!
कई चुनौतियों का सामना करने के बावजूद, कुमुद ने अपनी पूरी ताकत और दृढ़ संकल्प के साथ हर बाधा का सामना करते हुए एक योद्धा का साहस दिखाया है।
ज़ोल्गेन्स्मा नामक दवा, जिसकी कीमत ₹14 करोड़ है, उसे उसके जीवन में एक नई शुरुआत दे सकती है।
जब कुमुद 9 महीने की थी तब से हमने उसे बचाने के लिए हर संभव प्रयास किया है, उसे सर्वोत्तम देखभाल और सहायता प्रदान करने के लिए अपने सभी संसाधनों का निवेश किया है।
अब, हमारे पास आवश्यक वित्तीय साधनों की कमी हो रही है।
हम आप पर भरोसा कर रहे हैं कि आप हमारी नन्ही बच्ची की मदद करेंगे और उसे वह जीवन देने में मदद करेंगे जिसकी वह हकदार है।
यहां बताया गया है कि आप उसे कैसे मौका दे सकते हैं...
दान करें: कुमुद की ज़ोल्गेन्स्मा दवा में योगदान करने के लिए अभी दान करें बटन पर क्लिक करें, जिसकी कीमत करोड़ों में है।
साझा करें: कहानी साझा करें ताकि यह अधिक लोगों तक पहुंच सके और मेरे बच्चों को जीवन में दूसरा मौका देने के लिए धन जुटा सके।
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.