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SMA Type 2 Limits Little Sofiya’s Mobility. Save Her!

SMA Type 2 Limits Little Sofiya’s Mobility. Save Her!

TM
Campaigner Details
Impactguru Verified

TOUFIK MOLLA
Bengaluru Karnataka Contact
SS
Beneficiary Details
Impactguru Verified

SOFIYA SULTANA
Child of TOUFIK MOLLA
Patient is currently not admitted

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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.
TM
Campaigner Details
Impactguru Verified

TOUFIK MOLLA
Bengaluru Karnataka | Contact
SS
Beneficiary Details
Impactguru Verified

SOFIYA SULTANA
Child of TOUFIK MOLLA
Patient is currently not admitted

Latest Update


Dear Donors,

Sofiya Sultana is currently undergoing treatment with Risdiplam along with regular physiotherapy, and her medication is ongoing as advised by the doctors. She requires continuous medical care and supervision.

Your prayers and generous support mean so much during this time. Every donation helps ensure uninterrupted treatment and strengthens her journey toward recovery.

Story



I am Toufik Molla, a father from Nimdaria village, West Bengal. My 2‑year‑old daughter, Sofiya, is my world. She was a cheerful child once, always smiling, trying to take her first steps. Then, little by little, her strength began to fade.


Fifteen months ago, the doctors, told us that Sofiya has Spinal Muscular Atrophy Type 2, a rare genetic disease that weakens the muscles. Her body cannot produce the protein needed to move or even sit freely. Since then, her life has changed completely.


Today, Sofiya struggles to stand or walk. She needs support for every movement. She cannot even sit without help. Even her laughter comes after pain. Every night, I watch her struggle to move her little legs.


Her ongoing treatment is at Bangalore Baptist Hospital. The doctors have said there’s hope, a life‑saving injection called Zolgensma, a one‑time gene therapy that gives the missing gene her body needs. It can help her live, move, and smile like any other child. The treatment costs around ₹16 crore, but Novartis has offered an instalment plan that brings the immediate cost down to ₹9 crore. For a daily labourer like me earning a humble monthly income, it still feels impossible.


We’ve already spent about a lakh so far. We sold all our gold and even our small piece of land. Neighbours have been helping us with daily expenses.


In our family of 6, my father, mother, wife, elder daughter, Sofiya, and I, everyone prays for her recovery. The doctors have urged us not to delay. The treatment must be given as soon as possible for a chance to save her life.


I’m reaching out to you. Please help me give my little girl a chance to live. She deserves to feel the earth beneath her feet, to play with her sister, to laugh without pain.


I believe that with your kindness, Sofiya will stand again.


How to help:


Donate: Click on the ‘Donate Now’ button and contribute to Sofiya’s treatment.

Share: Share Sofiya’s story with your friends and family and support further.


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একজন বাবার আকুতি — দয়া করে আমার মেয়ে সোফিয়ার জীবন বাঁচাতে সাহায্য করুন

আমার নাম তৌফিক মোল্লা। আমি একজন বাবা, এবং আমার ছোট্ট মেয়ে সোফিয়া'র জীবন বাঁচানোর জন্য আমি যা কিছু সম্ভব, সব কিছু করার চেষ্টা করছি।


সোফিয়া এক বিরল ও প্রাণঘাতী জেনেটিক রোগে আক্রান্ত — যার নাম Spinal Muscular Atrophy (SMA) Type 2)। এই রোগ ধীরে ধীরে তার চলাচল, শ্বাস-প্রশ্বাস, এমনকি একদিন জীবনধারণের ক্ষমতাও কেড়ে নিচ্ছে। যদি দ্রুত চিকিৎসা না করা হয়, তাহলে পরিস্থিতি আরো ভয়াবহ হয়ে উঠবে।


এই রোগের একমাত্র কার্যকর চিকিৎসা হলো Zolgensma — একটি এককালীন জিন থেরাপি, যা সোফিয়ার জীবন বাঁচাতে পারে। এই চিকিৎসার মোট খরচ প্রায় ১৬ কোটি টাকা, তবে Novartis কোম্পানির একটি কিস্তির ব্যবস্থার মাধ্যমে এখন প্রাথমিকভাবে ৯ কোটি টাকা প্রয়োজন। এই পরিমাণ টাকা আমাদের মধ্যবিত্ত পরিবারের পক্ষে জোগাড় করা একেবারেই অসম্ভব।


একজন বাবার চোখের সামনে তার সন্তানকে দিনদিন দুর্বল হয়ে যেতে দেখা সত্যিই ভয়ঙ্কর ও অসহ্য। তবুও আমি আশা হারাইনি। সেই শেষ আশাটুকু এখন আপনার সাহায্যের ওপর নির্ভর করছে।


আপনার সাহায্যে একটা জীবন বাঁচতে পারে

দান করুন — যতটুকু পারেন। প্রতিটি টাকা আমাদের এক ধাপ সামনে এগিয়ে নিয়ে যায়।

শেয়ার করুন — দয়া করে এই বার্তাটি আপনার বন্ধু, পরিবার, এবং পরিচিতদের সঙ্গে ভাগ করে নিন।

আপনার ছোট্ট একটি সাহায্য সোফিয়ার জীবনে আলো ফেরাতে পারে। দয়া করে পাশে দাঁড়ান।


আপনার সাহায্যই আমাদের আশার আলো।


অশেষ কৃতজ্ঞতা ও আশায়,


তৌফিক মোল্লা

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
Documents

Updates(2)


#1 (03 Feb, 2026) - From TOUFIK MOLLA

Dear Donors,

Sofiya Sultana is currently undergoing treatment with Risdiplam along with regular physiotherapy, and her medication is ongoing as advised by the doctors. She requires continuous medical care and supervision.

Your prayers and generous support mean so much during this time. Every donation helps ensure uninterrupted treatment and strengthens her journey toward recovery.

#2 (03 Oct, 2025) - From TOUFIK MOLLA

Dear Donors,

Baby Sofiya is courageously fighting Spinal Muscular Atrophy (SMA) Type 2, a rare genetic disorder that weakens her muscles and makes it difficult to move, breathe, or perform basic actions.

She is currently on regular Risdiplam medication and physiotherapy, which help slow the progression of the disease but cannot cure it. The only treatment that can save her life is Zolgensma, a one-time gene therapy costing ₹16 crore. An instalment plan reduces the upfront cost to ₹9 crore, giving us a chance to secure her treatment.

Your support, through donations, prayers, and sharing her story, can give Sofiya a chance to live a healthy, happy childhood

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