“I hold my son in my arms and hope that I will soon watch him grow up healthy.” - Ravi Tejavath, father.
As a farmer from a small village in Telangana, I always wondered about the life I would give my children. After my daughter was born, we were blessed with the gift of a son, my 1-year and 3-month-old Baby Mahansh. I imagined a life where he goes to school, laughs with us and runs around with his friends but…My wife and daughter look at me with tears in their eyes saying, “When is Mahansh going to be okay?”
What troubles my son?
It began 9 months ago, my son Mahansh was losing weight and struggling to sit, crawl, walk and could not even stand. The doctors at Rainbow Children's Hospital and BirthRight, Karkhana in Secunderaba,d said to us, “Your son is facing severe motor delay with motor regression and weakness.”
By the 10th of June 2025, my son was diagnosed with Spinal Muscular Atrophy Type 2.
Spinal Muscular Atrophy (SMA) type 2, also known as intermediate SMA, is a life-threatening genetic condition causing progressive muscle weakness that typically begins between 6 and 18 months of age, allowing affected children to sit independently but not walk.
What is the treatment required?
My baby needs a life-saving drug Risdiplam and Zolgensma. As of now, he is undergoing physiotherapy but the doctors say, “The imported medicine can save his life but he needs it as soon as possible.”
Risdiplam is an oral medication approved for treating Spinal Muscular Atrophy (SMA) Type 2, working by increasing the production of the essential Survival Motor Neuron (SMN) protein by modifying SMN2 gene splicing.
Zolgensma is a one-time, intravenous (IV) gene therapy for Spinal Muscular Atrophy (SMA) that targets the genetic root cause of the disease.
It would be a dream come true to see my son recover from SMA and someday grow up to be a doctor. But for now, my son needs support to fight and I turn to you.
We have already taken loans on interest and spent more than 1.20 lakh rupees but Mahansh needs more support. The life-saving drug costs ₹16 cr, It is you who can help my son gain the strength to sit, stand and soon walk with ease. Help him by donating now.
How can you help my baby?
Donate to his treatment.
By donating, you help ensure that he receives the treatment that saves his life.
Share his story with your family and friends.
By sharing his story with your loved ones and friends, you will help to amplify his voice to those who care and are willing to donate.
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Disclaimer -
SMA is a progressive disease that causes muscles to weaken over time. To prevent further deterioration and slow the progression,the child urgently needs the drug Risdiplam to preserve muscle function only if it is prescribed by the doctor, While the fundraising for Zolgensma is underway, starting Risdiplam immediately is a critical step to safeguard the child’s life and preserve muscle function.
కేవలం 1 సంవత్సరం 3 నెలల వయసులో, బేబీ మహన్ష్ స్పైనల్ మస్కులర్ అట్రోఫీ టైప్ 2 తో పోరాడుతున్నాడు
తన చిన్న శరీరంలో బలాన్ని పొందడానికి అతనికి ఖరీదైన రిస్డిప్లామ్ మరియు జోల్జెన్స్మా అవసరం
మీ దాతృత్వం అతనికి సహాయపడుతుంది
ఇప్పుడే దానం చేయండి
నా బిడ్డకు మీరు ఎలా సహాయం చేయగలరు?
అతని చికిత్సకు విరాళం ఇవ్వండి.
దానం చేయడం ద్వారా, అతని ప్రాణాలను కాపాడే చికిత్స అతనికి అందేలా మీరు సహాయం చేస్తారు.
అతని కథను మీ కుటుంబం మరియు స్నేహితులతో పంచుకోండి.
మీ ప్రియమైనవారు మరియు స్నేహితులతో అతని కథను పంచుకోవడం ద్వారా, శ్రద్ధ వహించే మరియు దానం చేయడానికి సిద్ధంగా ఉన్నవారికి అతని స్వరాన్ని విస్తృతం చేయడానికి మీరు సహాయం చేస్తారు.
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.