My name is Gaurang K. Nayak, and today I am writing this with a father's heart that is filled with fear, hope, and an unbreakable determination to save his son. My little boy, Shaurya, is just 4 years old. At an age when children should be running around, laughing, and exploring the world, my son is fighting a cruel and progressive disease called Duchenne Muscular Dystrophy (DMD). As parents, we always dream of watching our children grow, go to school, make friends, and achieve their dreams. But for us, every day is a reminder that time is slipping away. Duchenne Muscular Dystrophy gradually weakens the muscles, making it harder for children to walk, climb stairs, lift their arms, and eventually even breathe on their own.
Hearing this diagnosis shattered our world. No parent is ever prepared to hear that their child has a life threatening genetic disorder. Shaurya is currently under medical care at SPARSH Hospital, Bengaluru, and The Children's Hospital, Vadodara. His doctors have recommended ELEVIDYS gene therapy, a treatment that offers hope of slowing the progression of this devastating disease and giving him a better quality of life.
Unfortunately, this hope comes with an unimaginable cost. The treatment requires ₹26 crore an amount that is far beyond what our family could ever dream of arranging. I work tirelessly to provide for my family, but despite all our efforts, we have already exhausted our savings and have spent nearly ₹1 lakh on medical care. Every passing day brings more expenses, more uncertainty, and more fear. As a father, it breaks me to know that a treatment exists for my son, yet it feels so far beyond our reach because of its cost.
Today, I am setting aside my pride and asking for your help.
Every contribution whether it is ₹500, ₹1,000, or any amount you can spare brings Shaurya one step closer to receiving the treatment that could change his future. If you are unable to donate, please consider sharing our fundraiser with your family, friends, colleagues, and social networks. A single share can reach someone who may be able to help save my son's life. Your kindness can give Shaurya the chance to keep walking, keep smiling, and keep dreaming. More than anything, it can give our family hope during the most difficult time of our lives. From the bottom of my heart, I thank you for standing with us. Your support, prayers, and generosity mean more than words can express.
Please help us give Shaurya the chance to live the childhood every child deserves.
With gratitude,
Gaurang K. Nayak
(Father of Shaurya Nayak)
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
