Crowdfunding

We have a gift for your kindness!

Claim Gift

Help more Patients with GEM Subscription

GEM : Give Every Month
GEM is a monthly donation subscription that helps you save patients in India with timely treatment.

Fundraiser ended on Jan 08, 2026

Help 1.5-Year-Old Kushi Fight SMA Type 2 – Her Only Hope is Zolgensma

Help 1.5-Year-Old Kushi Fight SMA Type 2 – Her Only Hope is Zolgensma

TK
Campaigner Details
Impactguru Verified

Tharun kumar
Visakhapatnam Andhra Pradesh New Contact
KD
Beneficiary Details
Impactguru Verified

Kushi Duddi
Child of Tharun kumar
Patient is currently not admitted

of $ 1,011,236

6,650 Donors
TK
Campaigner Details
Impactguru Verified

Tharun kumar
Visakhapatnam Andhra Pradesh New | Contact
KD
Beneficiary Details
Impactguru Verified

Kushi Duddi
Child of Tharun kumar
Patient is currently not admitted

Story


Hello Everyone,


My name is Tharun Kumar, and I am pleading for your help to save my precious Daughter, Kushi Duddi. At just 1.5 years old, Kushi has been diagnosed with Spinal Muscular Atrophy (SMA Type 2) — a rare and cruel genetic disorder that weakens the muscles needed for even the simplest movements, such as sitting, crawling, and eventually breathing. Every day, I watch my child struggle, and every day my heart breaks a little more.


The only treatment that can give Kushi a real chance at life is Zolgensma, a one-time gene therapy often called the most expensive drug in the world. It has the power to stop the progression of this devastating disease and allow my daughter to live a healthy, happy life. But the cost is overwhelming — ₹9 crore (₹9,00,00,000) — far beyond anything we can manage on our own.


As a father, I want nothing more than to see my daughter grow up strong and healthy. We have already drained our savings, borrowed from friends and relatives, and reached out to every possible source for help. But this amount is simply too big for our family to raise without the kindness and generosity of people like you.


Every moment is critical. SMA is a progressive disease, and with each passing day, Kushi’s muscles weaken further. The sooner he receives Zolgensma, the better her chances of recovery and living a normal life. Delaying this treatment could mean losing the opportunity forever.


I humbly ask for your support. Every contribution, no matter the size, takes us one step closer to saving Kushi’s life. If you are unable to donate, you can still help powerfully by sharing this fundraiser with your family, friends, and social networks. Spreading the word could connect us with the help we so desperately need.


From the bottom of my heart, I thank you for your generosity, compassion, and prayers. With your support, we can give Kushi the greatest gift of all — the gift of life and a future filled with possibilities.

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
Documents

Comment


Top Influencers


Impactguru

Fundraisers for This Cause



Touch more lives with your Kindness !

playstore
X

Access and manage fundraisers at your fingertips!

Get important fundraising tips, a personalized dashboard and real-time updates with ImpactGuru’s new and improved crowdfunding app.

qrcode

Scan the QR code to download the app

mobile-out-image
mobile-inside-image