“I see my great fear in front of my eyes, it’s watching my child in pain.” - Pradeep, father.
Yashwin is just 2 years and 4 months old. At an age when children learn to run, play, and explore the world, my son fights to simply hold his head up. His twin sister cries as she sees her brother, wondering what lies ahead for him.
It broke our hearts to know that my son has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a rare genetic condition that weakens his muscles and slowly takes away his ability to move and breathe.
My Son’s Brave Fight
We first sensed something was wrong when Yashwin was around one year old. After months of tests, hospital visits, and sleepless nights, our world shattered when doctors confirmed SMA. Since then, life has never been the same.
Yashwin cannot sit, stand, or walk on his own. He struggles with muscle weakness, poor head control, and breathing difficulties. Yet, every day, he looks at us with innocent eyes full of hope. As parents, it breaks our hearts to see him trying so hard.
The Hope Ahead
Doctors have told us that ₹16 cr Zolgensma, a one-time gene therapy, is the only life-saving treatment that help him fight. But it costs an amount far beyond the reach.
Until we can arrange this, Yashwin is on Risdiplam, a lifelong medication costing ₹16,000 per bottle. Alongside this, physiotherapy, the use of a BiPAP machine, and prosthetics to prevent scoliosis form the essential supportive care to help him maintain strength and mobility.
Recently, he managed to sit independently for a few seconds, it was a small victory that filled us with tears and hope.
I am the sole earning member of a family of seven, supporting my wife, three children which include Yashwin’s twin sister and elder brother, and my elderly parents. Despite my best efforts, our savings are nearly exhausted, and we now depend on crowdfunding to continue Yashwin’s treatment.
Our only wish is….
“To see Yashwin stand on his own feet, walk to school, and live independently like any other child.”- Yashwin’s family.
Today, I am asking for your kindness.
Your donation can give my son a chance to begin his journey into childhood, happily and healthily.
How can you help my son?
Donate to his treatment.
By donating, you help ensure that he receives the treatment that saves his life.
Share his story with your family and friends.
By sharing his story with your loved ones and friends, you will help to amplify his voice to those who care and are willing to donate.
****
2 ಯ/ಓ ಯಶ್ವಿನ್ ಅವರಿಗೆ ಸ್ಪೈನಲ್ ಮಸ್ಕ್ಯುಲರ್ ಅಟ್ರೋಫಿ (SMA) ಟೈಪ್ 2 ಇರುವುದು ಪತ್ತೆಯಾಗಿದೆ.
ಅವರಿಗೆ ತೀವ್ರ ಸ್ನಾಯು ದೌರ್ಬಲ್ಯವಿದೆ ಮತ್ತು ಅವರು ಹೆಚ್ಚು ಹೊತ್ತು ಕುಳಿತುಕೊಳ್ಳಲು, ನಿಲ್ಲಲು ಅಥವಾ ಸ್ವತಂತ್ರವಾಗಿ ನಡೆಯಲು ಸಾಧ್ಯವಿಲ್ಲ.
ಅವರು ನಿಯಮಿತ ಭೌತಚಿಕಿತ್ಸೆಯೊಂದಿಗೆ ರಿಸ್ಡಿಪ್ಲಾಮ್ ಚಿಕಿತ್ಸೆಗೆ ಒಳಗಾಗುತ್ತಾರೆ.
ವೈದ್ಯರು ₹16 ಕೋಟಿ ಝೋಲ್ಜೆನ್ಸ್ಮಾ ಜೀನ್ ಚಿಕಿತ್ಸೆಯನ್ನು ತುರ್ತಾಗಿ ಶಿಫಾರಸು ಮಾಡುತ್ತಾರೆ
ಈಗಲೇ ದಾನ ಮಾಡಿ!
ನನ್ನ ಮಗನಿಗೆ ನೀವು ಹೇಗೆ ಸಹಾಯ ಮಾಡಬಹುದು?
ಅವನ ಚಿಕಿತ್ಸೆಗೆ ದೇಣಿಗೆ ನೀಡಿ.
ದಾನ ಮಾಡುವ ಮೂಲಕ, ಅವನ ಜೀವವನ್ನು ಉಳಿಸುವ ಚಿಕಿತ್ಸೆಯನ್ನು ಅವನು ಪಡೆಯುವುದನ್ನು ಖಚಿತಪಡಿಸಿಕೊಳ್ಳಲು ನೀವು ಸಹಾಯ ಮಾಡುತ್ತೀರಿ.
ಅವನ ಕಥೆಯನ್ನು ನಿಮ್ಮ ಕುಟುಂಬ ಮತ್ತು ಸ್ನೇಹಿತರೊಂದಿಗೆ ಹಂಚಿಕೊಳ್ಳಿ.
ಅವನ ಕಥೆಯನ್ನು ನಿಮ್ಮ ಪ್ರೀತಿಪಾತ್ರರು ಮತ್ತು ಸ್ನೇಹಿತರೊಂದಿಗೆ ಹಂಚಿಕೊಳ್ಳುವ ಮೂಲಕ, ಕಾಳಜಿ ವಹಿಸುವ ಮತ್ತು ದೇಣಿಗೆ ನೀಡಲು ಸಿದ್ಧರಿರುವವರಿಗೆ ಅವನ ಧ್ವನಿಯನ್ನು ವರ್ಧಿಸಲು ನೀವು ಸಹಾಯ ಮಾಡುತ್ತೀರಿ.
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.