DONATE SHARE SUPPORT
Please help us save our child’s life. Your kindness can be the miracle we’ve been praying
for.
"Our Tiny Hero Big Battle Help Sidd Overcome DMD."
Help Siddharth Soar Battling DMD at Just 5. Help Keep Sidd Walking, Laughing, Dreaming. Add strength to our Super Hero Sidd Fights DMD - Duchenne Muscular Dystrophy. Let’s Give Sidd Wings Before Time Steals His Steps
A Parent's Plea: Save Our Little Boy Before Time Runs Out
We are Kaushik and Anupriya, parents of a brave and beautiful 5-year-old boy, Siddharth Behind his joyful smile lies a silent battle Siddharth is fighting Duchenne Muscular Dystrophy (DMD), a cruel, progressive genetic disorder. Each day, DMD slowly takes away his muscles, his strength.
Watching our son struggle while knowing a treatment exists but is out of reach is the hardest pain any parent can endure. We are reaching out to you, with hope in our hearts and urgency in our voice.
We need your help to save Sidd’s life.
What Is DMD and Why Is It So Urgent?
Duchenne Muscular Dystrophy is a rare disorder caused by a mutation in the dystrophin gene the one responsible for keeping muscles intact. Children with DMD gradually lose their ability to walk, lift their arms, and even breathe or eat on their own. Most are bound to a wheelchair by their early teens and rarely live beyond their twenties.
The disease is relentlessly progressive, and there is one beacon of hope a revolutionary gene therapy called ELEVIDYS (developed by Sarepta Therapeutics, USA). This is the world’s first and only approved treatment that targets the genetic root of DMD.
The catch? It must be given early, before too much muscle is lost.
Sidd is still in the initial phase of DMD, showing no outward muscle deterioration.
Hope Exists But It's Priced at ₹26 Crores
Elevidys, the breakthrough gene therapy, is Siddharth’s best shot at fighting DMD. But hope comes at a steep cost ₹26 Crores. As parents, there is no greater agony than knowing a treatment exists but being unable to afford it. Every day we wait, the disease progresses.
We are running out of time.
What This Means to Us: A Hug, A Walk, A Future
Elevidys is not just medicine. It is Siddharth’s only chance at life. Without it, we face a future where our little boy will stop walking, stop playing, and slowly lose the ability to even hug us.
With it, he could grow up, go to school, make friends, and dare to dream something every child deserves. We want to give our son that chance. We want to hear his laughter echo for years to come.
But we can't do it alone..
How You Can Help:
Become a Part of Siddharth’s Miracle
We are humbly asking for your help. Every rupee you donate takes us one step closer to the goal. Every share of this campaign could reach someone who can help. Every prayer matters.
Here’s what you can do:
a. Donate whatever you can — every bit counts
b. Share this story far and wide — on WhatsApp, social media, email
c. Support us with your words, strength, and prayers
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
