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Support Baby Duti Dinesh Arya

Help My Daughter Fight Rare Disease — Support Her Life-Saving Treatment

Help My Daughter Fight Rare Disease — Support Her Life-Saving Treatment

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Campaigner Details
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Dinesh Arya
Mumbai Maharashtra Contact
BD
Beneficiary Details
Impactguru Verified

Baby Duti Dinesh Arya
Child of Dinesh Arya
Patient Hospitalised at
Bai Jerbai Wadia Hospital for Children, Parel, Mumbai , Mumbai

of $ 27,322

327 Donors
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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.

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Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.
DA
Campaigner Details
Impactguru Verified

Dinesh Arya
Mumbai Maharashtra | Contact
BD
Beneficiary Details
Impactguru Verified

Baby Duti Dinesh Arya
Child of Dinesh Arya
Patient Hospitalised at
Bai Jerbai Wadia Hospital for Children, Parel, Mumbai , Mumbai

Story


My name is Dinesh Arya, and I am reaching out to seek help for my young daughter, who is bravely fighting a rare and serious medical condition called Activated Phosphoinositide 3-Kinase Delta Syndrome (APDS). This is a rare inherited immune disorder that weakens her body’s ability to fight infections, making even small illnesses dangerous for her.


For the past two and a half years, our family has been living through constant hospital visits, medical tests, and emotional stress. Watching my daughter struggle with her health every day has been heartbreaking. Despite all challenges, she continues to smile and fight with courage, giving us hope and strength.


Doctors have now advised an urgent bone marrow transplant, which is the only long-term treatment that can give her a chance at a healthy and normal life. Without this procedure, her condition may continue to worsen. The total cost of the transplant and related treatment is approximately ₹25,00,000 — an amount far beyond what our family can manage alone.


So far, we have already spent more than ₹1,00,000 on her treatment, using all our savings and resources. We are doing everything possible as parents, but we now need the kindness and support of generous people to help us save our child.


Your contribution, no matter how small, can bring us closer to giving our daughter a second chance at life. Along with donations, sharing this appeal with others will also help us reach more kind hearts.


We sincerely request you to stand with us during this difficult time and help our daughter receive the life-saving treatment she urgently needs.


Your support can make a miracle possible.


_______________________________________________________________________________


मेरा नाम दिनेश आर्य है, और मैं अपनी छोटी बेटी के लिए मदद की अपील करने के लिए आपसे संपर्क कर रहा हूँ। वह एक दुर्लभ और गंभीर बीमारी, एक्टिवेटेड फॉस्फोइनोसिटाइड 3-काइनेज़ डेल्टा सिंड्रोम (APDS) से बहादुरी से लड़ रही है। यह एक दुर्लभ आनुवंशिक प्रतिरक्षा संबंधी रोग है, जो उसके शरीर की संक्रमणों से लड़ने की क्षमता को कमजोर कर देता है, जिससे छोटी-सी बीमारी भी उसके लिए खतरनाक बन जाती है।


पिछले ढाई वर्षों से हमारा परिवार लगातार अस्पताल के चक्कर, मेडिकल जांच और मानसिक तनाव से गुजर रहा है। हर दिन अपनी बेटी को तकलीफ में देखना हमारे लिए बेहद दर्दनाक रहा है। फिर भी, वह हमेशा मुस्कुराते हुए हिम्मत से लड़ रही है और हमें उम्मीद और ताकत देती है।

डॉक्टरों ने अब तुरंत बोन मैरो ट्रांसप्लांट कराने की सलाह दी है, जो उसे एक स्वस्थ और सामान्य जीवन देने का एकमात्र स्थायी उपचार है। इस इलाज के बिना उसकी स्थिति और गंभीर हो सकती है। इस ट्रांसप्लांट और पूरे उपचार का कुल खर्च लगभग ₹25,00,000 है, जो हमारी आर्थिक क्षमता से बहुत अधिक है।


अब तक हम अपनी सारी बचत और संसाधनों का उपयोग करते हुए ₹1,00,000 से अधिक खर्च कर चुके हैं। माता-पिता होने के नाते हम अपनी तरफ से हर संभव प्रयास कर रहे हैं, लेकिन अब हमें अपनी बेटी की जान बचाने के लिए आप सभी के सहयोग की आवश्यकता है।

आपकी छोटी-सी मदद भी हमारी बेटी को नया जीवन देने की दिशा में एक बड़ा कदम हो सकती है। कृपया दान करने के साथ-साथ इस अपील को अधिक से अधिक लोगों तक साझा करें, ताकि हम और दयालु लोगों तक पहुंच सकें।


हम आपसे विनम्र निवेदन करते हैं कि इस कठिन समय में हमारा साथ दें और हमारी बेटी को जीवन-रक्षक उपचार दिलाने में मदद करें।


आपका सहयोग एक चमत्कार कर सकता है। 🙏

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances: i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the treatment,
Impact Guru shall have the discretion to use such surplus funds to allocate to i) other patients on Impact Guru for their life-saving treatment and/or donors to provide health benefits with object to maximize social impact; and/or ii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
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