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https://www.impactguru.com/fundraiser/help-to-baby-devansh
Like any other parent, we were equally thrilled when we heard our baby boy's first cry after his arrival. He is the light of our lives. From soft lullabies to joyful giggles, 1 year and 7 months just went by in the blink of an eye.
But now the cycle of life, the wheels of happiness, have turned.
My name is Harshal Bhavsar. On 23rd November 2023, my wife and I were overwhelmed with tears of joy. We held our baby boy in our arms for the very first time, and we couldn’t stop thanking God for sending a miracle into our lives.
Today, we shut our eyes and keep praying for another miracle - the miracle of raising enough funds for our child Devansh’s treatment.
Devansh has a condition called SMA Type 2 (Spinal Muscular Atrophy), a rare genetic disorder that slowly weakens a child’s muscles, affecting their ability to move, eat, and even breathe freely.
Until it happened to my child, I had never heard of this condition. But there is hope. A life-saving gene therapy called Zolgensma, approved by the US FDA (Food and Drug Administration), offers a chance at recovery. It can help Devansh live a normal childhood.
Currently, our one-year-old is on Risdiplam, an oral medication that increases the production of the SMN protein, crucial for maintaining motor neuron health.
Devansh is now 1 year and 7 months old. We found out about his condition when he was just 16 months old. With timely treatment, we hope our little one can recover, but we can’t do it alone.
Here’s how you can help:
- To donate to Devansh’s treatment, visit ImpactGuru and contribute.
- Share his story with your friends, family, and on social media to reach more hearts.
- Our baby boy’s future now lies in the hands of kind-hearted people like you.
**Disclaimer - SMA is a progressive disorder that causes Devansh's muscles to weaken over time. To prevent further deterioration and slow the progression, Devansh urgently needs the drug Risdiplam to preserve muscle function, only if it is prescribed by the doctor. While the fundraising for Zolgensma is underway, starting Risdiplam immediately is a critical step to safeguard the child’s life.**
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तुम्ही कशी मदत करू शकता ते येथे आहे:
देवांशच्या उपचारासाठी देणगी देण्यासाठी, इम्पॅक्टगुरूला भेट द्या आणि योगदान द्या.
त्याची कहाणी तुमच्या मित्रांसोबत, कुटुंबासह आणि सोशल मीडियावर शेअर करा जेणेकरून अधिकाधिक लोकांपर्यंत पोहोचेल.
आमच्या बाळाचे भविष्य आता तुमच्यासारख्या दयाळू लोकांच्या हातात आहे.
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.