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Ayaansh needs world’s most expensive drug. You are his last hope!

Ayaansh needs world’s most expensive drug. You are his last hope!

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Campaigner Details
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Yogesh Gupta
Parent of Ayaansh Gupta
Hyderabad Contact
AG
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Ayaansh Gupta
funded in 97 days

$ 1,280,801 Raised of $ 2,253,521

37,331 Donors
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YG
Campaigner Details
Impactguru Verified

Yogesh Gupta
Parent of Ayaansh Gupta
Hyderabad | Contact
AG
Beneficiary Details
Impactguru Verified

Ayaansh Gupta

Latest Update


Dear Donors!

Together, we have reached another milestone- Rs 6+ Crore!

We saw a dream for Ayaansh. A dream in which he gets Zolgensma and recovers from the atrocities of SMA.

With all your support, donations and shares, I see that our wish is soon going to come true. Ayaansh was really excited when he saw all the celebrities talking about him. Yes, we loved to read those posts out to him! He gave his most adorable smile and tried to point at his own picture!

On a serious note, Ayaansh is breathing through the BiPAP machine. The time he spends on it is increasing. That means the muscles in his chest are getting weaker. We give him physiotherapy, to retain the elasticity of his muscles, but it can only do so much.

We are getting there, with your support. You are taking Ayaansh's story to the world by sharing it on all social media platforms. Please continue spreading Ayaansh's need for Zolgensma (a $2.1 million drug) with the same vigour.


Story


“You can’t do anything about this child. Just love him” this is what one among the many doctors had told the Gupta couple when their young son was diagnosed with Spinal Muscular Atrophy (SMA). Little Ayaansh has not been able to run around carefree or enjoy the simple pleasures of childhood yet. His life has been dominated by hospital visits, doctor consultations, and medicines every single day.






27th May 2018- the happiest day in the life of Rupal and Yogesh Gupta,

the day their son was born. With tears of happiness in their eyes, they named their kid Ayaansh.


As their lives began with their new addition to the family, at around 6 months of age, they realized that little Ayaansh was missing the milestones which were usually achieved by other kids his age. He hadn’t started crawling or wasn’t sitting up. They started reading about why this could be happening and thought that it would just be a normal delay and eventually it would happen. Little did they know that something far more severe is happening in their son’s body.


When he didn’t have the control to even hold up his neck at 8 months of age, the parents were worried and took him to Rainbow Children’s Hospital. There, after countless consultations and appointments with multiple specialists, the parents found out that Ayaansh is suffering from SMA, a life-limiting condition where for the majority of children (approximately 95%) life expectancy is less than 18 months. “We felt our lives were shattered when the doctors said that he will not live for more than 4-6 years.”


Since SMA is a multidimensional disease the parents had to visit multiple specialists for little Ayaansh. Neurologists, pulmonologists, Orthodontists, Physiotherapists, nutritionists are some of them.


Currently, Ayaansh is 2 years and 11 months of age and fighting this battle. There is only a ray of hope for the little boy, the world’s most expensive medicine – Zolgensma. It's been almost 2 months since his parents have started this fundraiser for Ayaansh. He will be completing 3 years this May, but the question is will he be able to celebrate his 3rd birthday?


Until now his childhood has been unlikely different than that of any ordinary kid. Sadly, Ayaansh’s health seems worse than before. His breathing complications have increased due to which he happens to breathe through his belly and has a chest deformation called pigeon’s chest. He requires physiotherapy daily for at least 4-5 hours. Completely on a liquid diet, he is unable to swallow properly and on a good day he throws up whatever he eats twice. He currently requires the help of a suction machine because of the mucus that’s accumulated due to the constant coughing. On an average day, he vomits around 5 times. He needs BiPAP support for breathing for 12 hours a day and often suffers from sleep apnea. Lately, his parents have even discovered a lump in his stomach and are taking their doctor’s suggestion on the same.


What not this little child has to bear until he gets his magic drug which could free him from all the pain. His parents Yogesh and Rupal have their willpower shaking at this time now. It's heartbreaking for them to see their child even lose the ability to hold the objects with his own strength. Help this couple gift back their child his childhood. Time has caught a rapid speed, funds need to be collected before 27th May. Doctors have suggested the 16crore drug needed to be injected in Ayaansh at any cost to save him from the worst circumstances. We have just 56 days in our hands to save little Ayaansh. This is an alert for all of us to save his life before something unfortunate rings the bell.


To Know More About Ayaansh's Health Update Please Click On The Below Social Media Handles:


Facebook: https://m.facebook.com/Ayaanshfightssma


Instagram: https://instagram.com/ayaansh_fights_sma


Twitter: https://twitter.com/FightsSma?s=08








https://smanewstoday.com/zolgensma/?cn-reloaded=1

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  • - Account number : 700701717157379
  • - Account name : Ayaansh Gupta
  • - IFSC code : YESB0CMSNOC
  • (The digit after B is Zero and the letter after N is O for Orange)
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Updates(6)


#1 (22 Apr, 2021)

Dear Donors!

Together, we have reached another milestone- Rs 6+ Crore!

We saw a dream for Ayaansh. A dream in which he gets Zolgensma and recovers from the atrocities of SMA.

With all your support, donations and shares, I see that our wish is soon going to come true. Ayaansh was really excited when he saw all the celebrities talking about him. Yes, we loved to read those posts out to him! He gave his most adorable smile and tried to point at his own picture!

On a serious note, Ayaansh is breathing through the BiPAP machine. The time he spends on it is increasing. That means the muscles in his chest are getting weaker. We give him physiotherapy, to retain the elasticity of his muscles, but it can only do so much.

We are getting there, with your support. You are taking Ayaansh's story to the world by sharing it on all social media platforms. Please continue spreading Ayaansh's need for Zolgensma (a $2.1 million drug) with the same vigour.


#2 (03 Apr, 2021)

Dear Donors,

It is your support that keeps us positive through the trials that SMA puts Ayaansh through. His health is declining and the need for Zolgensma is growing every day.

You have helped us without a second thought. Today, we again ask you for a small help. We know that if we can create more awareness for Ayaansh's need on social media, things can look up for our fundraising efforts. We have therefore created a google form where you can tell us about those who would be enthusiastic to join our son's cause.

Here is the link to the form- https://forms.gle/fFYJkm9GQkZQBV74A

Please fill it up for Ayaansh's sake and keep sharing his story. We need your prompt help in the matter.

#3 (16 Mar, 2021)

Dear Donors,

We are getting there and we have hit yet another milestone! With your love and support, we are now Rs 13 crore away from the coveted wonder drug- Zolgensma. We are confident that with your help we will get our Ayaansh the life-saving medicine.

Ayaansh is actually not getting any better. Muscle atrophy only grows with age in cases of SMA and we are scared for our boy. Thus we are requesting you to continue sharing Ayaansh's battle with SMA with as many folks as you can. We are also sharing our social media links. If you push ahead, our cause, the day is not far when we will reach our goal. Please donate and share. 


Facebook: https://m.facebook.com/Ayaanshfightssma

Instagram: https://instagram.com/ayaansh_fights_sma

Twitter: https://twitter.com/FightsSma?s=08

#4 (05 Mar, 2021)

Dear Donors,

Ayaansh's health is deteriorating by the day with SMA strengthening its noose. The boy is losing all his body functions as his muscles fail. On March 5, 2021, Ayaansh's dad had his birthday and his only wish on his special day was that he succeed in saving his little one.

Ayaansh needs the world's most expensive medicine, Zolgensma costing Rs 16 crore to overcome spinal muscular atrophy. Please share little Ayaansh's story as much as you can. Help him beat the disease today.

#5 (19 Feb, 2021)

Dear Donors,

Cheers to you and us! We have crossed our second milestone by raising Rs 2+ crore on Ayaansh's fundraiser. We have 14 more milestones to celebrate together and then the biggest one- Ayaansh getting the world's most expensive drug- Zolgensma.

Thank you, for your amazing response to our SOS call. Without your constant inspiration and love, we would have probably crumbled under the pressure of arranging Ayaansh's life-altering crores. But we stand strong because we have you by our side.

Coming back to our Ayaansh, his condition is just as bad. In the interest of time, we have come up with a few pointers that can help you and us reach the golden figure.

Here is what we have thought of. Please feel free to help us out in your own way, any way you can. Do keep sharing Ayaansh's story to make it go viral. We need all your help to save our sweet boy and on time. Help us.


#6 (11 Feb, 2021)

Dear Donors,

As our little one battles SMA with all his might, your generous help has given us the confidence that we can surely save Ayaansh. We are here to share with you the first milestone of our fundraiser! 

Yes, together, you and we have raised Rs 1 crore for Ayaansh's treatment.

Now, the wonder drug is only Rs 15 cr away! Yes, the amount is huge, but if we can raise a crore, we can raise it all! We request you to continue sharing Ayaansh's story with your friends and family and on your social media.

There was a time when there was no cure for SMA. Children perished. Today, Zolgensma- the world's most expensive drug, can change the affected children's fortunes. Please continue to be a part of Ayaansh's battle to good health. We as a family need you! As for my baby's health, he isn't doing great. The mucus accumulation has caused a chest infection. He needs physiotherapy so that his chest muscles remain tight. He also needs a suction machine to clear out the mucus. The machine will be used 2-3 times a day to provide him with some relief. His dependency on the BiPAP machine has also increased.

We are concerned about his failing health and are waiting desperately to arrange the funds to get him Zolgensma. Please accompany us in our efforts to save our son. Donate and share.

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