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Subhajit Chakraborty has never kicked a football, never run to his mother. At 13, he sits at home in pain, his own hands his greatest enemy.
Born with Lesch-Nyhan Syndrome, a cruel genetic condition that the family only understood when Subhajit was 8, his body has spent years turning against itself. He would pull out his own nails. Bite his own skin. Not out of anger, but because his brain, rewired by a missing enzyme, simply couldn't stop him. His parents watched, helpless, as their son hurt himself and wept through the pain he caused himself.
While other boys his age are crammed in classrooms complaining about homework, Subhajit has never sat in a classroom. The disease stole that from him before he ever had the chance to want it. His father, wakes before dawn every day and mounts a bicycle to deliver meals, earning ₹500 on a good day, while his own child waits at home unable to walk. His mother never leaves Subhajit's side, a housewife in title, a full-time caregiver in reality navigating physiotherapy schedules, medications, and the quiet grief of watching her son suffer something she cannot fix with love alone.
And now, the cruelty has doubled. Their youngest, 1-year-old Sudarshan, was diagnosed with the same syndrome at just two months old. Blood in his urine was the first sign, uric acid already ravaging a body that had barely begun to live. Two sons. Same diagnosis. One family is already breaking at the seams. Lesch-Nyhan Syndrome demands prolonged physiotherapy at Apollo Multi-Speciality Hospital, constant medication, and unrelenting vigilance, none of which come cheap, and none of which a ₹500-a-day income can sustain. This is not a story of giving up. Father still rides out every morning. His wife still shows up every single day. Subhajit, despite everything his body puts him through, is still here, still their son, still fighting.
But they cannot do this alone anymore.
2 boys. One devastating diagnosis. A family that has already given everything, and now needs someone to give back.
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Subhra Chakraborty
kolkata WEST BENGAL
Beneficiary
Subhajit and Sudarshan
Child
Patient Hospitalized at
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