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For most families, childhood is filled with running, playing and dreams for the future. But for 13-year-old Samanvith and 9-year-old Mokshith, childhood has become a daily battle against a life-threatening genetic disorder—Duchenne Muscular Dystrophy (DMD).

Their mother still remembers the day she first noticed something unusual in her elder son. When Samanvith was 7, he began falling often and struggled to keep up with other children. After multiple tests, the diagnosis shattered their world.
“When the doctor said ‘Duchenne Muscular Dystrophy,’ I didn’t understand. But when he explained that my son’s muscles will keep getting weaker… I felt the ground slip from under my feet,” their mother recalls.

Over the years, DMD has stolen Samanvith’s ability to walk. Today, at just 13, he is completely dependent on a wheelchair and sometimes requires BiPAP support to breathe comfortably.
His younger brother Mokshith, just 9 years old, has the same cruel condition. He can still walk, but climbing stairs has become almost impossible. The family lives in constant fear of how fast the disease might progress.
The boys continue their schooling—8th grade and 4th grade—but every day is a difficult one. Their mother watches helplessly as their muscles weaken while trying to hold on to a normal routine.

With the doctors recommending Exon Skipping (Eteplirsen treatment) as the next line of therapy, hope has finally resurfaced. But this specialised treatment is extremely expensive and requires continued medical support.
The family’s financial condition is fragile.
Their mother works as a tailor, earning just ₹8,000 a month. She is the only earning member ever since the boys’ father passed away from COVID four years ago.

“After my husband died, I told myself I had to be strong for my children. But now, with both of them sick… I don’t know how to fight this alone,” she says, her voice breaking.
Travelling 200 km to the hospital for consultations and check-ups is another burden—physically, financially and emotionally.
Still, she does everything she can. She stays awake at night adjusting BiPAP for Samanvith, holding Mokshith as he tries to climb even a small step, and silently wiping her tears so her children don’t see her fear.

“My sons dream of becoming engineers… of growing up. I just want them to have a future. Please help me keep them alive,” she pleads.
With timely support, both brothers can receive the treatment they desperately need to slow the progression of DMD.
Your kindness can give this mother the strength she has been searching for—and give her children a fighting chance at life.
Campaigner
Chaithra B H
bengaluru KARNATAKA
Beneficiary
Samanvith S and Mokshith S
Child
Patient Hospitalized at
Dear Donors,
Samanvith S and Mokshith were recently admitted and discharged, with Mokshith last admitted last month and both discharged last Wednesday. Mokshith’s next consultation is scheduled for tomorrow. No surgery has been performed, and their current health condition is good under medical supervision.
Your continued prayers and generous support truly mean a lot. Every donation helps ensure proper follow-up care and strengthens their journey toward recovery.
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