Our son Shrijay is suffering from a rare liver disease called Glycogen Storage disorder, he is 1 year 7 months old now. Due to the above-stated disease, he has growth failure. From the age of four months, he has been admitted to hospital 8 times, in which 6 times he was in ICU and was kept on a ventilator and other life-saving procedures were done. Right now he is in ICU due to acute metabolic acidosis and the connected ailments.
As per the panel of Doctors' opinion, liver transplantation is the last resort which can save the child and this has to be done as early as possible. Tests before surgery and the cost of transplantation and medicines after surgery are estimated to cost over Rs.25 Lakhs. Even after that child has to be on immunosuppressants lifelong which are again costly. We have undergone a lot of hospital expenses till date. We can no longer bear the cost of treatment of our child. As such we are desperately seeking help through this forum. Kindly help us generously to save our child.