Support B. Shrijay

838 days left

Fundraiser ended on Jul 05, 2017

Help us to save Shrijay

Help us to save Shrijay

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deepak sharma
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B. Shrijay
funded in 868 days

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deepak sharma
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B. Shrijay

Latest Update


Baby work up hospital bill



Help us to save Shrijay - story -7

Story



Hello Readers,


Our son Shrijay is suffering from a rare liver disease called Glycogen Storage disorder, he is 1 year 7 months old now. Due to the above-stated disease, he has growth failure. From the age of four months, he has been admitted to hospital 8 times, in which 6 times he was in ICU and was kept on a ventilator and other life-saving procedures were done. Right now he is in ICU due to acute metabolic acidosis and the connected ailments.

 As per the panel of Doctors' opinion, liver transplantation is the last resort which can save the child and this has to be done as early as possible. Tests before surgery and the cost of transplantation and medicines after surgery are estimated to cost over Rs.25 Lakhs. Even after that child has to be on immunosuppressants lifelong which are again costly. We have undergone a lot of hospital expenses till date. We can no longer bear the cost of treatment of our child. As such we are desperately seeking help through this forum. Kindly help us generously to save our child.






Updates(5)


#1 (03 Jun, 2017)

Baby work up hospital bill



Help us to save Shrijay - story -7

#2 (02 Jun, 2017)

Dear Donors, Shrijay was admitted in Global hospital Lakdikapul, Hyderabad for Pre operative work up on 29May'17 and got discharged on 02Jun'17. Baby’s tests are done. Reports are yet to come. I am Shrijay’s mother Pavani. Donor i.e., my tests are going on. After completion of all tests and receiving reports, surgery might be after 10 days or so depending on Doctors availability. Shrijay is 19months old now, due to his liver disease he can’t sit and stand, his development milestones are delayed. He has gone through 8 hospital admissions in which he was in ICU 6 times & was kept on Ventilator. In last two ICU admissions laparoscopy surgeries were done to do Peritoneal Dialysis. Every two hours we have to give him special GSD Diet or else he will have hypoglycemia, which may cause seizures and he may go into Coma, which is a life risk. Liver Transplantation is a very complicated time taking surgery which again has a life risk for baby. Now we are left with no other option as it’s the last resort which can save the baby’s life and which will even avoid risk of baby getting admitted into ICU often due to acute metabolic acidosis and as per Doctors his growth will start only after surgery. We have applied for CM Relief Funds, however as we don’t have white ration card and are not covered under Arogya Sri Health scheme, govt. help seems to be hopeless. We have mailed to Pratyusha Support and sent chaser even, still no reply from that team. Individual donations are our only hope now. I specially thank each and every one for supporting to this noble cause. It’s only due to all your contributions we are able to go ahead for such a costly surgery. I request all the donors to pray that Shrijay’s liver transplantation operation will be successful and he will be healthy and fine after surgery. Thanks a lot for your support.

#3 (21 May, 2017)

We thank you for your kindness. Your contributions and support are truly strengthening our hopes for giving Shrijay a healthy and long life. We assure you that whatever amount is collected through donations we will spend each and every Rupee for our baby’s treatment itself. After surgery, baby has to take immuno suppressants daily and lifelong so that his body accepts new liver. Those medicines are estimated to cost over Rs.25,000 per month. Recent blood test and scan reports suggest that surgery needs to be done at the earliest possible convenience. We are eagerly looking forward for the completion of our targeted goal amount of 25 Lakhs, so that we can inform Doctors to go ahead for their surgical procedures. We have even applied for CM Relief Funds. We have met the concerned authorities and explained the criticality of our baby’s position and urgency of the needed funds. Hope to receive some positive response from government within stipulated point of time. We stay at Hyderabad, Telangana, India. We can be reached on the below contacts: B. Jagan Mohan Rao (Father of Shrijay) Phone: 9642926622 Email: jagan.b2710@gmail.com B. Pavani (Mother of Shrijay) Phone: 9989060222 Email: pavanibolakonda@gmail.com Thank you all.

#4 (21 May, 2017)

We thank you for your kindness. Your contributions and support are truly strengthening our hopes for giving Shrijay a healthy and long life. We assure you that whatever amount is collected through donations we will spend each and every Rupee for our baby’s treatment itself. After surgery, baby has to take immuno suppressants daily and lifelong so that his body accepts new liver. Those medicines are estimated to cost over Rs.25,000 per month. Recent blood test and scan reports suggest that surgery needs to be done at the earliest possible convenience. We are eagerly looking forward for the completion of our targeted goal amount of 25 Lakhs, so that we can inform Doctors to go ahead for their surgical procedures. We have even applied for CM Relief Funds. We have met the concerned authorities and explained the criticality of our baby’s position and urgency of the needed funds. Hope to receive some positive response from government within stipulated point of time. We stay at Hyderabad, Telangana, India. We can be reached on the below contacts: B. Jagan Mohan Rao (Father of Shrijay) Phone: 9642926622 Email: jagan.b2710@gmail.com B. Pavani (Mother of Shrijay) Phone: 9989060222 Email: pavanibolakonda@gmail.com Thank you all.

#5 (06 May, 2017)

Thanks a lot for all your donations, with Gods' and each and every ones blessings, our son Shrijay is discharged from hospital, he is at home now. Today we took him to Pediatric Hepatologist for checkup. USG and blood tests are done for baby at hospital. Based on those test reports, Doctor will then decide with in how many days the transplantation surgery has to be done. We have to arrange funds by that time. Once again thank you so much one and all for your kindness. My personal request, ' Please pray for my baby'.

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