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Support Trishika Manvi Ray

Help Trishika Manvi Ray Fight SMA Type 2 And Access Life-saving Treatment.

Help Trishika Manvi Ray Fight SMA Type 2 And Access Life-saving Treatment.

MC
Campaigner Details
Impactguru Verified

Mukesh Chandra Ray
Odisha Odisha Contact
TM
Beneficiary Details
Impactguru Verified

Trishika Manvi Ray
Child of Mukesh Chandra Ray
Patient is currently not admitted

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MC
Campaigner Details
Impactguru Verified

Mukesh Chandra Ray
Odisha Odisha | Contact
TM
Beneficiary Details
Impactguru Verified

Trishika Manvi Ray
Child of Mukesh Chandra Ray
Patient is currently not admitted

Story


Help My Little Daughter Trishika Receive Life-Changing SMA Treatment.



A Parent's Heartfelt Appeal


My name is Mukesh Chandra Ray, and I am raising funds for my beloved daughter, Trishika Manvi Ray, who is battling Spinal Muscular Atrophy (SMA) Type 2. As parents, watching our child face such a serious condition is heartbreaking. We are doing everything possible to protect her health and give her the best chance at a healthier future.

Trishika’s condition is now affecting even the little movements that come naturally to other children. Her regular crawling has reduced, and she faces difficulty turning over while lying down. She is not yet able to stand or walk, and even her crawling is not normal. She also has difficulties swallowing and continues to vomit if she tries to swallow any solid food.



Her Treatment and Medical Care


Trishika is currently undergoing treatment at Dr Rela Institute and Medical Centre, Chennai, Tamil Nadu. Her doctors have advised Zolgensma as the required treatment for her condition. She needs gene therapy treatment along with continued medical care and support.

Her treatment and care also include occupational therapy, physiotherapy, a proper diet, and certain vaccinations to help prevent infections. These are important parts of helping her manage her condition and support her health.

This treatment is extremely expensive, and arranging the necessary funds has become an overwhelming challenge for our family.


The Financial Challenge


We have already spent approximately ₹2.5 lakh on her treatment, consultations, investigations, medicines, and related medical expenses. However, we now need ₹16 crore more to proceed with her treatment. This is an enormous amount, far beyond what our family can afford.



We Need Your Support


Despite our best efforts, we are unable to arrange the required funds on our own. The financial burden is becoming increasingly difficult, but we do not want financial limitations to stand in the way of our daughter receiving the treatment she needs.

Every day, we see her struggling with things that should have been simple for a child — crawling normally, turning over, swallowing, standing and walking. As her parents, it is painful to watch her lose these abilities while knowing that she needs timely treatment and continued care.


Every Contribution Matters


I humbly request kind-hearted individuals to come forward and support Trishika during this critical time. Every contribution, no matter how small, can bring us one step closer to arranging her treatment and protecting her future.

If you cannot donate, please consider sharing this fundraiser with your friends, family, colleagues, and social networks. Your share could connect us with someone who can help.

We are trying everything we can to protect our child’s health and give her a chance at a better future.


Your kindness, prayers, and generosity can give Trishika hope and help our family through this difficult journey.

Please stand with us.

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मेरा नाम मुकेश चंद्र रे है और मैं अपनी प्यारी बेटी, त्रिशिका मानवी रे के लिए फंड इकट्ठा कर रहा हूँ, जो स्पाइनल मस्कुलर एट्रोफी (SMA) टाइप 2 से जूझ रही है। माता-पिता के तौर पर, अपनी बच्ची को इतनी गंभीर बीमारी का सामना करते देखना दिल तोड़ने वाला है। हम उसकी सेहत की रक्षा करने और उसे एक स्वस्थ भविष्य देने के लिए हर संभव कोशिश कर रहे हैं।

त्रिशिका की हालत अब उन छोटी-छोटी गतिविधियों पर भी असर डाल रही है जो दूसरे बच्चों में स्वाभाविक रूप से होती हैं। उसका घुटनों के बल चलना कम हो गया है और लेटे हुए करवट लेने में भी उसे दिक्कत होती है। वह अभी खड़ी नहीं हो पाती या चल नहीं पाती, और उसका घुटनों के बल चलना भी सामान्य नहीं है। उसे कुछ भी निगलने में भी दिक्कत होती है और अगर वह कोई ठोस खाना निगलने की कोशिश करती है, तो उसे उल्टी हो जाती है।


उसका इलाज और मेडिकल देखभाल


त्रिशिका का इलाज अभी चेन्नई, तमिलनाडु के डॉ. रेला इंस्टीट्यूट एंड मेडिकल सेंटर में चल रहा है। डॉक्टरों ने उसकी बीमारी के लिए ज़ोलजेन्स्मा (Zolgensma) के इलाज की सलाह दी है। उसे जीन थेरेपी के साथ-साथ लगातार मेडिकल देखभाल और सपोर्ट की ज़रूरत है।

उसके इलाज और देखभाल में ऑक्यूपेशनल थेरेपी, फिजियोथेरेपी, सही खान-पान और संक्रमण से बचाने के लिए कुछ टीके भी शामिल हैं। ये सब उसकी बीमारी को संभालने और उसकी सेहत को बेहतर बनाने में मदद करने के लिए ज़रूरी हैं।

यह इलाज बहुत महंगा है और हमारे परिवार के लिए ज़रूरी फंड का इंतज़ाम करना एक बहुत बड़ी चुनौती बन गया है।


आर्थिक चुनौती


हम उसके इलाज, डॉक्टर से सलाह-मशविरे, जाँच, दवाइयों और उससे जुड़े मेडिकल खर्चों पर पहले ही लगभग ₹2.5 लाख खर्च कर चुके हैं। हालाँकि, अब उसके इलाज को आगे बढ़ाने के लिए हमें लगभग ₹16 करोड़ और चाहिए। यह एक बहुत बड़ी रकम है, जो हमारे परिवार की क्षमता से कहीं ज़्यादा है।


हमें आपके सहयोग की ज़रूरत है


हमारी पूरी कोशिशों के बावजूद, हम अकेले ज़रूरी फ़ंड का इंतज़ाम नहीं कर पा रहे हैं। आर्थिक बोझ बढ़ता जा रहा है, लेकिन हम नहीं चाहते कि पैसों की कमी हमारी बेटी के ज़रूरी इलाज में रुकावट बने।

हर दिन, हम उसे उन कामों के लिए संघर्ष करते देखते हैं जो एक बच्चे के लिए आसान होने चाहिए — जैसे सामान्य रूप से घुटनों के बल चलना, करवट लेना, निगलना, खड़ा होना और चलना। माता-पिता के तौर पर, उसे ये क्षमताएँ खोते हुए देखना बहुत दर्दनाक है, जबकि हम जानते हैं कि उसे समय पर इलाज और लगातार देखभाल की ज़रूरत है।


हर योगदान मायने रखता है


मैं दयालु लोगों से विनम्र अनुरोध करता हूँ कि वे आगे आएँ और इस मुश्किल समय में त्रिशिका का साथ दें। हर योगदान, चाहे वह कितना भी छोटा क्यों न हो, हमें उसके इलाज का इंतज़ाम करने और उसके भविष्य को सुरक्षित करने की दिशा में एक कदम और आगे ले जा सकता है।

अगर आप दान नहीं कर सकते, तो कृपया इस फ़ंडरेज़र को अपने दोस्तों, परिवार, सहकर्मियों और सोशल नेटवर्क के साथ शेयर करें। आपके शेयर करने से हम किसी ऐसे व्यक्ति से जुड़ सकते हैं जो मदद कर सके।

हम अपनी बच्ची की सेहत को सुरक्षित रखने और उसे बेहतर भविष्य का मौका देने के लिए हर संभव कोशिश कर रहे हैं।

कृपया हमारा साथ दें।

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.

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