“Every day matters in my son’s fight. Help him before it's too late.” - Radhika Thakur, mother.
When Aarav was born, I imagined watching him take his first steps, run into my arms, and fill our home with endless laughter. I never thought that every small movement would one day become a battle.
At just 23 months old, my son has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a rare genetic disorder that slowly weakens the muscles he depends on to sit, stand, and one day walk.
While other children his age are exploring the world with excitement, Aarav struggles with movements that should have come naturally. Every passing day reminds me that this disease does not wait!
Our doctors have advised Zolgensma gene therapy as urgently as possible. They have explained that early treatment gives Aarav the best chance to preserve the muscle function he still has. Every month we lose could mean damage that can never be reversed.
My husband works as an engineer and has done everything possible to support our family. We have used our savings, taken loans, accepted help from relatives, and spent several lakhs on Aarav's diagnosis and medical care. But the treatment he now needs is far beyond what we can manage on our own.
"As long as there is hope for Aarav, we will never stop fighting for him."- Gaurav Thakur, father.
As a mother, my greatest wish is to see my son walk beside me, play with other children, and grow up without this disease deciding what he can and cannot do.
Your contribution can bring Aarav closer to the treatment that could change his future.
Every donation, no matter the amount, moves him one step closer to the childhood he deserves. Please also share Aarav's story so it reaches more people willing to stand with our family.
How can you help him?
Donate to his treatment.
By donating, you help ensure that he receives the treatment that saves his life.
Share his story with your family and friends.
By sharing his story with your loved ones and friends, you will help to amplify his voice to those who care and are willing to donate.
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23 महीने का आरव 'स्पाइनल मस्कुलर एट्रोफी (SMA) टाइप 2' से जूझ रहा है। यह एक ऐसी जेनेटिक बीमारी है जो धीरे-धीरे बढ़ती है और उसकी मांसपेशियों को हर दिन कमज़ोर करती जाती है।
डॉक्टरों ने तुरंत 'ज़ोलजेन्स्मा' (Zolgensma) जीन थेरेपी करवाने की सलाह दी है। यह एक बार होने वाला इलाज है, जिससे उसके शरीर की हलचल बनाए रखने और भविष्य को बेहतर बनाने की सबसे अच्छी उम्मीद है।
इसमें होने वाली हर देरी से मांसपेशियों को ऐसा नुकसान हो सकता है जिसे ठीक नहीं किया जा सकेगा। इसलिए, आरव के जीवित रहने और अच्छी ज़िंदगी जीने के लिए समय पर इलाज बहुत ज़रूरी है।
उसके परिवार ने पहले ही लाखों रुपये खर्च कर दिए हैं, लेकिन अब उन्हें मदद की ज़रूरत है ताकि आरव को भी दूसरे बच्चों की तरह चलने, खेलने और बड़े होने का मौका मिल सके।
आप उसकी मदद कैसे कर सकते हैं?
उसके इलाज के लिए दान करें।
दान करके, आप यह पक्का करने में मदद करते हैं कि उसे वह इलाज मिले जिससे उसकी जान बच सके।
उसकी कहानी अपने परिवार और दोस्तों के साथ शेयर करें।
अपने करीबियों और दोस्तों के साथ उसकी कहानी शेयर करके, आप उसकी आवाज़ उन लोगों तक पहुँचाने में मदद करेंगे जो परवाह करते हैं और दान करना चाहते हैं।
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.