My name is Suraj Ghatol and I am raising funds for my son Deep who is suffering from a life threatening very rare disease Osteopetrosis. The only treatment for this disease is Bone Marrow Transplant. He may face major complications if the treatment is not done as soon as possible.
On 22nd June 2018, we blessed with a baby boy (Deep) who is 6 Months now. He was in hospital for 3 weeks after birth; he was able to grow as expected in the first few days. In third month, the radiologist and the children specialist diagnosed a bone disease which was confirmed later by a genetic test. We were shocked to know about the disease and only treatment for this disease is Bone Marrow Transplant which is costing us around Rs.35 lac and we need funds to continue the treatment and save his life.
Our family is very much waiting to see a smile on his face. When I come from office; I want to play with him and see a small smile, but due to his poor health and disease, he is not able to do so.
He is struggling with his life because, being diagnosed with a disease, he is not able to gain his weight and not able to grow as expected. Also, he is having cleft palate, so we are not able to feed him from mouth. Our family is struggling hard to save him from this condition and would like to get him out of this as soon as possible.
We have spent more than 1 lac just for diagnostic and HLA test for the disease. Also he needs regular checkups from doctor. Further to this, due to his poor health, we are not able to provide him vaccinations in government hospital.
We are unable to pay the required amount as am already flooded with many loans and not able to save anything due to daily medical expenses. In this situation, I am not able to save money and grow funds for my baby's treatment
I have been in a similar type of situation in 2013 where we spent Rs.10 lac for my father, but even after more than 2 months of hospitalization and treatment, we could not save him.
I request you to please help us raise the required amount by clicking on the donate button and/or sharing this fundraiser with family and friends.
We are grateful for your help!