Crowdfunding

We have a gift for your kindness!

Claim Gift
LIVE


Support Adithi Nilani

Help My Daughter Adithi Fight Spinal Muscular Atrophy Type 2

Help My Daughter Adithi Fight Spinal Muscular Atrophy Type 2

SN
Campaigner Details
Impactguru Verified

Shobana nilani
Delhi Delhi Contact
AN
Beneficiary Details
Impactguru Verified

Adithi Nilani
Child of Shobana nilani
Patient is currently not admitted

of $ 1,748,634

56 Donors
Every social media share can bring $80

Donate via UPI

Donate via Paytm/Google Pay/PhonePe


Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.

Scan the QR code from the app and make payment


Donations made through this fundraiser and UPI ID will be securely deposited into Impact Guru’s bank account for the patient’s treatment. This UPI ID is not associated with any individual’s or family’s personal bank account.
SN
Campaigner Details
Impactguru Verified

Shobana nilani
Delhi Delhi | Contact
AN
Beneficiary Details
Impactguru Verified

Adithi Nilani
Child of Shobana nilani
Patient is currently not admitted

Story


My name is Shobana, and I am raising funds for my daughter, Adithi Nilani, who is battling Spinal Muscular Atrophy (SMA) Type 2, a serious genetic neuromuscular condition that affects muscle strength and movement.


Adithi’s condition requires immediate and specialized medical care. After carefully evaluating her condition, her doctors at All India Institute of Medical Sciences (AIIMS), New Delhi, have advised her to undergo gene therapy on an urgent basis. This treatment is crucial to help manage her condition and give her a better chance at improving her quality of life.


As parents, we are doing everything possible to support our daughter and ensure that she receives the treatment she urgently needs. So far, we have spent approximately ₹50,000 towards her medical care. However, the cost of the recommended gene therapy is approximately ₹16 crore (₹16,00,00,000), which is far beyond what our family can afford on our own.


Every passing day is important for Adithi. We are reaching out to kind-hearted individuals to help us raise the funds needed to continue her treatment without interruption.


Your contribution, no matter how small, can bring hope to Adithi and our family during this difficult time. If you are unable to donate, sharing this fundraiser with your friends, family, and social networks can also make a meaningful difference.


We sincerely request your support and prayers for our daughter, Adithi Nilani.


_______________________________________________________________________________


मेरा नाम शोभना है, और मैं अपनी बेटी अदिति निलानी के इलाज के लिए धन जुटा रही हूँ, जो स्पाइनल मस्कुलर एट्रोफी (SMA) टाइप 2 जैसी गंभीर आनुवंशिक न्यूरोमस्कुलर बीमारी से जूझ रही है। यह बीमारी मांसपेशियों की ताकत और उनकी गतिविधियों को प्रभावित करती है।


अदिति की स्थिति के लिए तत्काल और विशेष चिकित्सा देखभाल की आवश्यकता है। उसकी स्थिति का सावधानीपूर्वक मूल्यांकन करने के बाद, अखिल भारतीय आयुर्विज्ञान संस्थान (AIIMS), नई दिल्ली के डॉक्टरों ने उसे तत्काल जीन थेरेपी कराने की सलाह दी है। यह उपचार उसकी बीमारी को नियंत्रित करने और उसके जीवन की गुणवत्ता में सुधार की बेहतर संभावना देने के लिए बेहद महत्वपूर्ण है।


माता-पिता के रूप में, हम अपनी बेटी को हर संभव सहायता देने और उसे आवश्यक उपचार दिलाने की पूरी कोशिश कर रहे हैं। अब तक हम उसके इलाज पर लगभग ₹50,000 खर्च कर चुके हैं। हालांकि, डॉक्टरों द्वारा सुझाई गई जीन थेरेपी की लागत लगभग ₹16 करोड़ (₹16,00,00,000) है, जो हमारे परिवार की आर्थिक क्षमता से कहीं अधिक है।


अदिति के लिए हर गुजरता दिन बेहद महत्वपूर्ण है। हम दयालु और मददगार लोगों से अपील कर रहे हैं कि वे उसके इलाज को बिना किसी रुकावट के जारी रखने के लिए आवश्यक धन जुटाने में हमारी मदद करें।


आपका छोटा से छोटा योगदान भी अदिति और हमारे परिवार के लिए इस कठिन समय में उम्मीद की एक नई किरण बन सकता है। यदि आप आर्थिक रूप से मदद करने में सक्षम नहीं हैं, तो इस फंडरेज़र को अपने दोस्तों, परिवार और सोशल मीडिया पर साझा करना भी हमारे लिए बहुत बड़ी मदद होगी।


हम आप सभी से अपनी बेटी अदिति निलानी के लिए सहयोग और प्रार्थना की विनम्र अपील करते हैं।

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances: i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the treatment,
Impact Guru shall have the discretion to use such surplus funds to allocate to i) other patients on Impact Guru for their life-saving treatment and/or donors to provide health benefits with object to maximize social impact; and/or ii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
Documents

Comment



Fundraisers for This Cause




Touch more lives with your Kindness !

playstore
X

Access and manage fundraisers at your fingertips!

Get important fundraising tips, a personalized dashboard and real-time updates with ImpactGuru’s new and improved crowdfunding app.

qrcode

Scan the QR code to download the app

mobile-out-image
mobile-inside-image