Crowdfunding

We have a gift for your kindness!

Claim Gift

Help more Patients with GEM Subscription

GEM : Give Every Month
GEM is a monthly donation subscription that helps you save patients in India with timely treatment.
ImpactGuru has waived off its fee for this cause

Fundraiser ended on Sep 16, 2025

Help My 3-Year-Old Boy Fight Rare SMA Disease and Bring Back His Smile

Help My 3-Year-Old Boy Fight Rare SMA Disease and Bring Back His Smile

MZ
Campaigner Details
Impactguru Verified

Mohammad Zubair
Lucknow Uttar Pradesh Contact
M
Beneficiary Details
Impactguru Impactguru

Mohammad
Child of Mohammad Zubair
Patient is currently not admitted

of $ 574,713

15 Donors
MZ
Campaigner Details
Impactguru Verified

Mohammad Zubair
Lucknow Uttar Pradesh | Contact
M
Beneficiary Details
Impactguru Impactguru

Mohammad
Child of Mohammad Zubair
Patient is currently not admitted

Story


My name is Mohammad Zubair, and I am writing this with a heart full of pain, fear, and a desperate hope for my son’s life. I am raising funds for my beloved 3-year-old son, Mohammad, who has been diagnosed with a rare and life-threatening genetic disorder called Spinal Muscular Atrophy Type 2 (SMA Type 2).


He is currently undergoing treatment at AIIMS Hospital, Raipur, where doctors have informed us that his condition is critical and he needs urgent and continued treatment to survive.


As a parent, watching my little boy suffer like this is beyond heartbreaking. Just a short while ago, he was laughing, playing, and exploring the world with innocent curiosity. But now, he is struggling to even move his body. The thought that such a small child has to face this much pain is something no parent should ever witness.


To treat SMA Type 2, he urgently needs a highly specialized and rare drug called Risdiplam, which comes with an overwhelming cost of ₹5 Crores (₹5,00,00,000). This is far beyond what our family can manage. We’ve exhausted every resource, and despite working hard, I am nowhere close to being able to afford this lifesaving treatment for my son.


That is why I’m reaching out to you with folded hands and a humble request. Your help can save my son’s life. Every single rupee you contribute will bring us one step closer to giving him a chance to live, to grow up, to go to school, and to simply be a child again.


If you are unable to donate, we completely understand, but please help us by sharing this fundraiser with your family, friends, and social media. A single share might reach someone who can help save our son’s life.


Please click on the donate button and become a part of our fight to give Mohammad a second chance. Your kindness, prayers, and support mean the world to us.


With gratitude and hope,

Mohammad Zubair

(Father of Mohammad)

===============================================================

मेरा नाम मोहम्मद जुबैर है, और मैं यह अपील एक दर्दभरे दिल, डर और अपने बेटे की जिंदगी के लिए एक उम्मीद के साथ लिख रहा हूं। मैं अपने प्यारे 3 वर्षीय बेटे मोहम्मद के इलाज के लिए धन जुटा रहा हूं, जिसे एक दुर्लभ और जानलेवा आनुवंशिक बीमारी स्पाइनल मस्कुलर एट्रॉफी टाइप 2 (SMA Type 2) का निदान हुआ है।


वह इस समय एम्स अस्पताल, रायपुर में इलाज करा रहा है, जहाँ डॉक्टरों ने हमें बताया कि उसकी हालत गंभीर है और उसे जीवित रहने के लिए तुरंत और लगातार इलाज की आवश्यकता है।


एक माता-पिता के लिए अपने छोटे बच्चे को इस तरह पीड़ित होते देखना दिल तोड़ने वाला अनुभव है। कुछ समय पहले तक वह हँसता, खेलता और मासूमियत से दुनिया को देखता था। लेकिन अब वह अपने शरीर को हिलाने में भी असमर्थ है। इतनी छोटी उम्र में इतने कष्ट सहना, किसी भी माता-पिता के लिए असहनीय है।


SMA टाइप 2 के इलाज के लिए, उसे एक अत्यंत महंगी और दुर्लभ दवा Risdiplam की आवश्यकता है, जिसकी लागत लगभग 5 करोड़ रुपये (₹5,00,00,000) है। यह राशि हमारी पहुंच से बहुत दूर है। हमने अपनी सारी जमा पूंजी खर्च कर दी है, दोस्तों और रिश्तेदारों से उधार लिया है, लेकिन अब हमारे पास कोई साधन नहीं बचा।


इसीलिए मैं आपसे folded hands के साथ, बहुत ही नम्रता से निवेदन कर रहा हूं। आपकी मदद मेरे बेटे की जान बचा सकती है। आपका हर एक रुपया हमें उस ज़िंदगी की ओर एक कदम और करीब लाएगा जहाँ वह फिर से मुस्कुरा सके, स्कूल जा सके और अपना बचपन जी सके।

अगर आप दान नहीं कर सकते, तब भी कृपया इस फंडरेज़र को अपने परिवार, दोस्तों और सोशल मीडिया पर साझा करें। आपकी एक शेयर से शायद कोई ऐसा व्यक्ति इसे देख सके जो हमारी मदद कर सके।


कृपया डोनेट बटन पर क्लिक करें और मोहम्मद को एक दूसरा जीवन देने की हमारी लड़ाई में हमारे साथ खड़े हों। आपकी दया, प्रार्थनाएं और समर्थन हमारे लिए अनमोल हैं।

आभार और उम्मीद के साथ,


मोहम्मद जुबैर

(मोहम्मद के पिता)

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances:
i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the drug/therapy required for SMA treatment; viii) Prescription of an alternative therapy for the Patient's treatment
Impact Guru shall ensure that such surplus funds are allocated for the following purposes:
i) Provision of alternative drug therapy treatments as prescribed by the attending physician for the Patient/s (if applicable). Such utilization may span across multiple years, as SMA therapies/treatments typically entail long-term, recurring costs; ii) If surplus funds persist even after the aforementioned allocation, they shall be employed to assist other patients on Impact Guru in their life-saving treatment, with the objective of maximizing social impact; iii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
Documents

Comment


Top Influencers


Impactguru

Fundraisers for This Cause



Touch more lives with your Kindness !

playstore
X

Access and manage fundraisers at your fingertips!

Get important fundraising tips, a personalized dashboard and real-time updates with ImpactGuru’s new and improved crowdfunding app.

qrcode

Scan the QR code to download the app

mobile-out-image
mobile-inside-image